Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
what should ii really focus on when talking to my doctor. i have explained my pain and other problems but yet she doesnt hear me. what do i need to say to her to get her to really be conserned? she doent acted conserned at all. and i am in pain and she hasnt put me on any lupus meds, can a regular doc put me on lupus med or do i need a reuhme? anyone? ~Sarina* (p.s. i cant spell worth beans)
deleted_user
Sometimes you have to fight to find a doctor who will listen to you. I know I've had many doctors at first think I was making my pain out to be much worse than it really was and so on. I tend to be somewhat upfront with my doctors and insist that they explain everything with me even if its routine stuff. I have found that works well for me. I hope you find a way to communicate with your doctor or find a different doctor who is more understanding.
deleted_user
You may wanna try keeping a daily jernal of how your feeling. The day before you go to the dr read over read over your jernal and make a list of what you want to tell your dr. You could even tell them out of so many days how many days were you in pain, and how bad was the pain. If you want a sample jernal sheet there are some on line. I was not able to find the one I use but If you would like to have a copy of the sheet I use just let me know. It helped my dr see how often I was experiancing all these simptoms and he began to understand me. Also its a good idea to take a list of things you want to talk about with your dr to your appointment. Im really tired I sure hope you understood what I was saying lol.... Jules
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I wrote down every symptom and brought it in to my doctor. I even had to change my primary doctor to one who was more proactive. With my list of symptoms it really clarified what was going on. Good luck!
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thanks. i think i will be much more ready for my next appointment. ~sarina*
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You really should be seen my a rhuemetolist if you haven't been yet. marilyn
deleted_user
Maybe you should change doctor. I went through 3 specialist before i found one i was comfortable with, and then i had to move. The one i am going to see this week specializes in Lupus Patients, and she is said to be a real people people... you need to find someone you are comfortable with. My advice...
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true blue82! true. i know i should change doctors. i'm ganna do what i can thanks everyone!
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
