I just want your honest opinions. I know your not doctors and all that. Just want your "feelings" to see or rather make me feel less of a nut case I suppose. I'll list my symptoms...2 spontaneous lung collapses (no underlying reason), small scarring evident on rt upper lobe of lung, numbness and tingling in hands and feet, sometimes my whole arm, hair fell out in patches, grew back after about a year. Confirmed rayneuds in hands and feet, calcium deposits that need to be surgically removed in right elbow and left hand. Extreme fatigue, pain in right hip, lower back, between my shoulder blades, pain in wrists. Positive ANA's. Inflamed joint in chest wall making it hard to breath, and multiple miscarriage. Thats the majority of it other than Im so tired all the time yet I can not sleep at night. Not sure if that is a symptom. Anyway, regular doctor said I had Lupus, Lupus specialist said she wasnt sure what I had and wasnt ready to call it Lupus. What are your thoughts and has anyone else gone through this kind of bouncing between diagnoses....Im scared and lonely and hurting, thank you for taking time for me...
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