
Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

deleted_user
I am starting to hate the night. I feel so much worse at night. All I have to do is get into bed and every little pain gets worse. My hands sell up and go numb, my shoulders start to throb, by hips ache if I put pressure on them, and now my neck is getting stiff. I think I am trying so hard to protect the parts that hurt that I am hurting the parts that don't.
To top it off, I am exhausted. But I can't stay comfortable for more than a couple of hours, then I am up. Sometimes I lay there trying to figure out what will be worse...not moving and letting the aches and pains continue to intensify or try to move and feel the agony of that horrible stiffness.
I am 36 and I have trouble getting down on the ground and then back up. I literally have to think about it in my head and try to come up with a method that won't make me wince, cry or get stuck.
I am sorry to complain, but it is 4:15 am, I am exhausted and all I want to do is sleep. I can't even remember energy.
I just want to believe that life might someday be normal again for me. A couple days without pain and one with energy would be a dream come true.
I am tired of feeling like a failure as a wife and woman. I am tired of disappointing myself.
Does anyone else have this night time issue? If so, have you found anything that helps?
To top it off, I am exhausted. But I can't stay comfortable for more than a couple of hours, then I am up. Sometimes I lay there trying to figure out what will be worse...not moving and letting the aches and pains continue to intensify or try to move and feel the agony of that horrible stiffness.
I am 36 and I have trouble getting down on the ground and then back up. I literally have to think about it in my head and try to come up with a method that won't make me wince, cry or get stuck.
I am sorry to complain, but it is 4:15 am, I am exhausted and all I want to do is sleep. I can't even remember energy.
I just want to believe that life might someday be normal again for me. A couple days without pain and one with energy would be a dream come true.
I am tired of feeling like a failure as a wife and woman. I am tired of disappointing myself.
Does anyone else have this night time issue? If so, have you found anything that helps?

deleted_user
Hey Kira. Are you on any steroids?? Anything for the pain and inflammation? I hope that you are not only on the Plaquenil!!!

deleted_user
No steroids right now, only plaquenil. I went to the doc on thursday and have to get tested and see him in a couple of weeks. Then we will readdress. Lots of Advil though..

deleted_user
Sounds like you need some stronger Pain pills along with the plaquinal.Make sure you tell the doc just how much pain you are in.I have had those kind of nights and sure am sorry you are going through all that pain.marilyn

deleted_user
Two things that have helped me - sleep meds & steroids. I would have gone insane without them. Hope they find something that works for you. I know those dread nights. My prayers are with you

deleted_user
Don't get down on yourself. This is part of the disease but keep in mind that you will have some good days. Definately talk to your rheumy about better pain meds. Plaquinel isn't even for pain. I take hydrocodone for pain daily and alot of times it's the only thing that helps me get through the workday.
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