Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
hi all
my name is alex and i live in belfast northern ireland and i am looking for some advice
i have been sick for 5 months now andi am not getting joy with my g.p or consultant
here are my symptoms
cold/flu
headache
stiff neck
nausea and being sick daily
lost weight 20lb
pains in arms and joints
exhausted all the time
low blood pressure
chest pain with palputations
lung pain
in june i was albe to climb ben nevis the highest mountain in britain and now i cant walk 500 meters with out being sick and sore and tired
got bloods done
auto nuclear antibody test came back as high 80
now other have changed
imuglobin is now 16.5 and it should be under 14
lymph is low
my g.p suspected lupas 3 months ago but now she is saying i have a virus
my glands all swoll up 3 weks ago i thought i was dying they where so sore
saw the g.p again today and i could not believe it she offered me steriods for lupus
i asked here do i have lupus and she just shrugger her shoulders
it nearly drove me mad
any advice anyone can offer me would be great
thanks
alex
my name is alex and i live in belfast northern ireland and i am looking for some advice
i have been sick for 5 months now andi am not getting joy with my g.p or consultant
here are my symptoms
cold/flu
headache
stiff neck
nausea and being sick daily
lost weight 20lb
pains in arms and joints
exhausted all the time
low blood pressure
chest pain with palputations
lung pain
in june i was albe to climb ben nevis the highest mountain in britain and now i cant walk 500 meters with out being sick and sore and tired
got bloods done
auto nuclear antibody test came back as high 80
now other have changed
imuglobin is now 16.5 and it should be under 14
lymph is low
my g.p suspected lupas 3 months ago but now she is saying i have a virus
my glands all swoll up 3 weks ago i thought i was dying they where so sore
saw the g.p again today and i could not believe it she offered me steriods for lupus
i asked here do i have lupus and she just shrugger her shoulders
it nearly drove me mad
any advice anyone can offer me would be great
thanks
alex
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
sometimes if you get a diagnosis of auto immune disorder, they can treat most of those about the same, and you'll feel better.
it might be wise not to get attached to having a diagnosis because some docs don't want to just slap on a permanent label so quickly and for that I am glad.
I would see a rheumatologist though. you might have to see several before you get one who listens and doesn't wave off your talk as nothing. with docs, I hope for the best, but expect something very below par. I finally found one at a large city hospital. finally.
hang in there!
lets see where that goes i will let u know
thanks again
alex