I have not been diagnosed with lupus or any other autoimmune condition as of yet, however my primary doctor told me that my labs are highly suspicious for lupus. What prompted the testing was an upper respiratory infection that would not go away. Last year I had an upper respiratory infection that took a good couple of months for me to fully recover. I then had a few good months where I felt great and then the anxiety attacks hit me. My doctor ran some labs and told me I might have an anxiety disorder. I tried lexapro but couldn't tolerate that and was on a small dose of xanax but didn't have to take it regularly. I saw a psychiatrist who wanted to put me on different meds but I refused. I went the natural route, educated myself about anxiety, and joined the anxiety support group on DS. I don't have problems with the anxiety anymore. Then in January of this year I developed muscle aches primarily in my back (not in my joints) and a sore throat and ear ache which my doc said was just a virus. I had my good days and bad days but seemed to recover. I resumed playing tennis and going for my walks and all my usual daily activities. A month later I started feeling short of breath. I figured it was anxiety and after a week went to the doctor who again diagnosed me with an upper respiratory infection (bronchitis) and put me on an antibiotic. It took a good 2 weeks for me to get over this. I was tired, anxious, short of breath, achy and just felt awful. I started feeling better, and the shortness of breath went away. In early March the shortness of breath came back and I was once again back in the doctor's office. He decided to do more blood work. Two weeks later he tells me I have a positive ANA and a negative CRP and started questioning me about skin rashes, photosensitivity, etc. and examined my mouth for ulcers. I haven't had any symptoms of lupus so he figured it was probably a false positive and wanted to run some additional tests. Last week I got called in and was told my repeat ANA was again positive (a weak positive; 1:40-1:80 range). All the other tests for various autoantibodies were negative except for the anti-rnp/sm which was a strong positive. He tested my urine for protein which was negative and all my other labs were normal. My sed rate was normal on 2 occasions as well. I've been referred to a rheumatologist and will be seeing her next week. I've been an emotional wreck this week but have also been PMSing big time! My cough has not gone away (it's not as bad) and I still cough up small amounts of white/clear phlegm. I mentioned this to my doctor who is not concerned as my chest x-ray was normal, my lungs are clear, and my oxygen sats are in the 97-99%. I started feeling the shortness of breath in the last couple of days but then again I've been upset so it could be anxiety. My cough could be from postnasal drip ( I have mild allergies). Have any of you had shortness of breath with lupus? I'm so confused and so worried now that my doc told me I may have lupus. I do have days where my back feels achy but then the next day I'm fine. I've been playing tennis and it seems to aggravate the back so I'm going to take a break for awhile. I know none of you can tell me whether or not I have lupus and I know that the rheumy may not be able to diagnose me. I'm 39 years old and have been healthy and active my entire life so I don't understand why my body may be turning against me. If you have any suggestions on helping me to deal with this uncertaintly please send them my way. Thanks for letting me vent!
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