Ok today I went to see my RA doc and my lupus is not getting better. It is sill active and he wants me to start an agressive type of treatment. It is a Iv injection 4 times for 4 weeks. Each treatment is 4 hours long. Side effects are infections and a rare chance of lymphoma. It would be a 4 week process and then continue with my lupus meds. He said most people that do this form of treatment have remission periods of not having lupus symptoms. I am really scared! I dont have to do it but since he hasnt seen any improvement he wants to treat this aggressively. I would like some support and just opinions on people who have done this? It is an iv injection each session 4 hours long. Almost like chemo. I am so sad I dont know what to do! Im so tired of everything. Tomorrow is my 28th birthday and I feel lost and sad. I want to give up sometimes. Anyone know of this? If so can I can feedback ? Thanks a lot. I have 6 weeks to decide until my next app with my rheumy doc.
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