I dont know where to start. I'm looking for some answers. I've had joint pains my whole life which were either diagnosed for Lymes, Osteo Arthritis and in 2000 RA. I later found out in 2007 that there was never a blood test done for RA and when done it come back negative. After many many dr visits of being told it was all made up in my head because they couldn't find the cause or they'd tell me I was too young to be experience these problems. After being treated for just Osteo until Dec. 2011 I started developing severe headaches. I repeatedly went to the drs and they said it was being made up to get medication. On Thursday Feb. 9th they finally had me thinking it was all made up so I told myself their was nothing wrong. Feb 11, 2012 I went into the ER as my left arm went numb, severe neck pain and left side of my head went numb. The ER dr said their was nothing wrong and sent me home. I knew it was something so I drove 2 hours to a bigger city ER and they did a MRI of my brain, while in the machine I had a stroke on my opcipital lobe. They then did some blood work and had a positive lupus anti-coagulant test. They immediately put me on aspirin. It was also found that I had severe swelling in my brain causing my optic nerve to be swollen and I was losing vision. After many many blood tests, over 100 in the next months they could not find the answer. I went thru predisone injections at the hospital but that was all besides being put on Gabapentin which is now up to 2pills 3x day. On March 26th 2013 while at a dry visit my left arm went numb and very painful in my neck again. They sent me over to ER and I was having a TIA stroke at which time the dr stated that I was suppose to be having monthly blood tests to regulate if the aspirin was keeping my blood thin enough. They then upped me to 2 325mg a day. At one time I thought it was MS but they said I only had 2 brain lesions and I needed 3 for a diagnosis. The ER dr at time of TIA said it was Lupus causing all the irratic symptoms but noone will do a test or diagnose me with anything. My hair has been falling out. I don't have the butterfly rash, but have been experiencing rashes randomly over my body mainly on my back but they keep saying it's dry skin but have never done a biopsy. Their are many other symptoms, but I can't seem to think of them right now as I have been experiencing short term mem loss since my first stroke. I'm on so many different pain meds for the joint pain but I'm so sick of it. In Nov. 2013 I switched all my care which was at Marshfield Clinic System over to Mayo Health System with hopes for better care. I don't have an appt with Rhuematology until mid March which the other clinic never even informed me that they are the specialists for Lupus and other problems I had been having. I was hoping that finding a support group would better help me with my situation.
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