Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Has anyone every had a positive and then a negative ANA? I have. Will it go positive again or am I Lupus free. Once my doctor said I have symptoms of Lupus, and that I would get Lupus before I die (she wanted to give me steroids and do two hip replacements) and now they say I have fibro and my lupus test is negative. I always suffer is so much pain, I am allergic to everything, I am always ill. Lots of joint and mussel pain, I forget. I get tired and exhausted easy especially when I am in the sun. So what do I have? Do I have to be afraid of my ANA turning positive again or is that unlikely? Has that happened to anyone else?
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
Michelle
So if it is a different doctor, take them copies of your previous labs so they have a history to go on. Then when you find a good doctor -KEEP THEM! even if they are out of network for your insurance, there are ways to get your insurance cocmpany to work with you and them. Having the same Internist to coordinate my care for the last 20 years has been invaluable in not having to go over old ground with each new doctor she has had me see(specialists ect..), so she could look at their recommedations and results in context of what she knows about me and my health history. It's hard when you have to find a new primary and start over. I avoid it at all cost if at all possible. (now if they retire you really, have to go looking,ask around,or ask Lupus Foundation, they make good recommedations).
Nan