Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hi, I am new here. I have lupus. the doctor hasnt told what kind yet, but I know I have it. I havent followed up with my doctor, because I left my job for a better opportunity, and have been waiting for my health benefits to kick in. well, just last week, I was layed off.right before the medical kicked in! I am not feeling well. I have 3 children, and I live with my boyfriend(not the kids dad,we are divorced)I am so achey today. I feel blue, and tired. I get absolutely NO support about this disease. Nobody takes it seriously. including my BF and my brothers and sisters, and parents, and kids! NONE. I feel like a loner in this. Im sick of acting like super woman. I want to be comforted.I am writing this so that I can vent. If I vent to anyone else, I get a blow off. I really try hard not to complain, but today I feel AWFUL!!!!!!!!! I think my BF thinks I exaggerate(sp?) Thanks for listening.
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It's okay to come here to vent because alot of us here are experiencing the same things you are. We understand what you're going through.
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WELCOME TO DS HOME OF THE LUPUS FAMILY. I'M BELIEF AND I WANT YOU TO KNOW THAT YOUR NOT ALONE. I GO THROUGH WENT THROUGH THE SAME THING. I'M HERE IF YOU NEED ME. I'M 11YRS INTO LUPUS NOW AND IT'S NO JOKE.....GOD BLESS :>)BELIEF
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i dont have lupus my wife does and until i did research on it I thought it was me and come to find out its not me its the lupus and that it will do all sorts of things to you. But until then i thought like your boy friend that it was over blown or some how a way for my wife to just not be with US. To be honest get your boyfriend to start goingthrough web sites and he will see that its not all in your head or so to speak. It helpd me alot
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Hi and thank you all for responding to my post. I was wondering,from gaenicke, what do you mean by u thought it was you, and realized it was her? Your post was very helpful, but I m curious about what you meant by that. Thank you thank you. all of you.
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what i meant was that it was her lupus and not her. The actions, moods, oand pain were not being done by her but were being caused by the lupus. Before i researched more on it i was thinking like you BF that it was her and come to find out its the lupus. Well as for your other question i had gotten as far as thinking that i might be causeing her to be with drawn and depressed but i found out that they are all part of thelupus and how it shows it self along with pain. boiled down its comes to this its not her doing this its the lupus making her almost like she is a un willing hostage to it.
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thank you ! you made me feel better. you are right. I am a hostage to it. now to get him to understand that.
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welcome, and feel free to vent anytime we all do-it's the only place I feel like anyone cares how i feel except my mom who is wonderful to me. I am Amy and I have had this crazy rollercoaster ride for almost 7 years and my hussband still thinks i exaggerate my symptoms he woes'nt understand or want to he says it's because he's scared-he might find out that one day I won't be the same fun girl he married and little does he know she's already gone, she just takes alot of medication and puts on a happy face and does her best to make it through each day. Everynight I go to be thinking thank god its over- and then you wake up in so much pain and say thank you god for another chance.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
