Oh No! Dairy and soy is so good for the body. Lupus effects the bones alot like arthritis. So the calcium in the dairy is very beneficial. Soy is such a good source of protein, so it's very good for the body as well. Now alot of people with Lupus have found out that having a gluten-free diet is very beneficial to their over-all health. I tried it. I didn't stick to it. There's alot of restictions in a gluten-free diet, but it is supposed to be helpful. So I hope this info helps. Hugs, Niecy.

Thats what I heard too Kaye about dairy products, wheat products but I would say that propably effects in your body. I mean depend as individual. I really ask this to the doctor if I need to follow special diets and he HE said no you can eat all you want just make sure you have lots of calcium suppliment in your body and vitamin D. I already have that calcium suppliment but the D? where could I get it from milk. I drink milk every day and it seems my tummy will bloatting, gassy and I got hurtburn. I just try to ignore it for a while then I try to ask dietesian she said you might allergy of milk so I dont drink milk now and it a little bit better alreay. But I still eat eggs and cheeses sometimes( sometimes only bec. everytime I eat these following day I have lot of whites in my scalp so I can tell I am allergic of this too.) thats why I just eat these dairy seldom. I also eat cakes, wheat sometimes also. ( I saw one time in store a snack food I read it contain wheat flour I did not waste my time to buy that tho' it is only a junkfoods.)

I have a problem filtering out potassium due to lupus nephritis. Dairy products and soy products have alot of potassium in them. Basically, I am on what the hospitals call a RENAL diet. This is a low sodium and low potassium diet. I used to drink like 10 glasses of milk a day before we found out that my kidneys were having trouble filtering it out of my body.

So yea, potassium can be dangerous to some people with lupus.

I really don't have anything to do with dairy anymore. I have tried to drink 4 oz of milk (the amount allowed in my diet) but i couldn't stand the taste. I had gotten so used to not having it my taste buds were like "Eww!!"

Doctors never discussed with me a diet for lupus except put on a low-sodium diet, I guess that's for the kidneys part of it. Salt can also bloat. As for milk, I drink 2% every day ... I guess it's not fatty. I know you're supposed to avoid fatty foods and sweets, but I really haven't been avoiding these things. I just try to eat fruit and some veggies too. Maybe in time I can figure out a nice diet.

Oh an was told recently I need calcium and vitamin d - and that Tums with Calcium would be good for both stomach (acid) protection and its calcium aspect. As for the vitamin D --- i'm guessing if not from milk then a multivitamin . Women's One A Day ?

Soy can be bad news for some who have thyroid issues, it can slow thyroid function down, and even stop it in babies and toddlers it they have unseen thyroid issues. Do a Google on soy and thyroid and there's a ton of info.

I've done a lot of reading, reading, reading on diet and lupus and some of it has worked greatly!
Dairy is mostly a no-no because, after all it is a hormone from an animal. we still consume some but try to make sure it's all organic.
there's a lot of controversy on soy and the different forms and which is good and which is bad. when I hear this variation in opinion, I just rotate it in my diet. some soy milk, some organic cow milk, some nut milk and so on.
that's just my own consensus and I hope it helps you.
my acupuncturist used to say soy is OK unless I begin to feel "cold" and I've noticed that a too much soy tends to make me feel less "hot."
it's all a balance I guess.

My rheumatologist is very strict about diet and Lupus. Her main concern is chemicals and additives in products. I now eat only organic foods and free range meat and poultry. No farmed raised fish etc.. Milk I can not handle either. I have to take calcium supplements and vitamins and it is more expensive to shop this way but I think it is helping.

Avoid HIgh fat dairy. Drink non fat organic milk that is not homogenized. There are certain studies against use of soy because of the phytoestrogens. If you do drink soy do so in moderation. I personally don't drink it anymore. Lupus patients tend to have predesposed to high cholesterol, so I suggest just go for non fat dairy and avoid cheeses and stuff (high cholesterol stuff).

I am nearly off medication due to my diet of plant based vegan diet. I am not using dairy, wheat or soy and it can be done. Shop at whole foods. I can't even begin to explain my change and what I eat. I don't go hungry. I only feel better each and every day. Purchase the books "lupus the recovery diet" and the "newstart" cook book. Read and absorb all they say.

I never heard that dairy and soy are bad for lupus patients, and I've been diagnosed since 1990.

Based on the different comments, I think the use of dairy/soy is based on each individual's situation and how the lupus is affecting them.

If you feel uncomfortable about using dairy/soy, try almond milk. It's high in protein and has the consistency of milk.

Well, a lot of information here to absorb, I am sure all the contributors will help you in your search for a healthy eating plan. I do eat fresh, home grown or organic (where possible) foods, but have no particular exclusions...I confess to following the old adage..."A little of what you fancy does you good". Wishing you well in your quest.

Hey MelBa, I am just the opposite of you. My body doesn't absorb enough potassium on it's own so I have to take a supplement of it three times a day.

I have had a great deal of good luck with goat milk, and goat milk products like goat milk butter, milk, and goat milk ice cream. I cannot do cow dairy at all, not even yogurt without triggering my lupus symptoms.
Laloo's makes a great goat milk ice cream and I find it at Whole Foods Market, along with the Meyenburg goats milk and butter.

Hope it helps!

i think the best thing to do is to see an allergist...i think most insurance programs cover them...everyone is different so everyone has different allergies...since we have lupus most likely most of us have similar allergies...