Hello everyone. I am newly diagnosed with SLE, Sjogren's and Raynaud's. My primary concern right now are the headaches, double vision and confusion that I am experiencing. Both my neurologist and rheumatolgist believe that these are a result of CNS Lupus, but they aren't 100% sure that is the cause. It is about to get me down. I have had a lot of other symptoms for over a year that I have delt with better (joint pain, muscle pain, fatigue, ect) But, this thing with my head is making my life almost unbearable. I haven't been able to work since June, had to leave a job I loved that I had worked hard to get. Kind of lost trying to find a "purpose" for my life now that it has changed. Hoping to get better and get my "life" back, but don't know if that is going to happen. Anyone have any advise for me? Anyone else experienced the lupus headaches thing on a continual everyday basis?
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