Hello everyone. I am newly diagnosed with SLE, Sjogren's and Raynaud's. My primary concern right now are the headaches, double vision and confusion that I am experiencing. Both my neurologist and rheumatolgist believe that these are a result of CNS Lupus, but they aren't 100% sure that is the cause. It is about to get me down. I have had a lot of other symptoms for over a year that I have delt with better (joint pain, muscle pain, fatigue, ect) But, this thing with my head is making my life almost unbearable. I haven't been able to work since June, had to leave a job I loved that I had worked hard to get. Kind of lost trying to find a "purpose" for my life now that it has changed. Hoping to get better and get my "life" back, but don't know if that is going to happen. Anyone have any advise for me? Anyone else experienced the lupus headaches thing on a continual everyday basis?
Posts You May Be Interested In
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??