Hi. My name is Cara. I was recently diagnosed with lupus, after a couple years of going back and forth with doctors. I was starting to think that it was all in my head like they were telling me, and now that I know what it is, I kinda wish it was all in my head. After doing some research on lupus, I am now more scared and upset than I was before. I feel like crap ALL the time, and I fear it being like this for the rest of my life (however long or short that may be). My rhuemy started me on plaquenil and neurontin, but I hear that plaquenil takes a long time to feel the effects. The neurontin doesn't seem to help with the pain at all, but I just started that a couple days ago. Does anyone know if that takes a while to help as well? Also, my pain is not so much in my joints, but more in the long bones of my arms and legs. I also have a vitamin D deficiency and recently had surgery for hyperparathyroidism. I am told that the bone pain I am having could be from those, but even on 50,000 IU of Vit D a week, plus calcium and D supplements daily, I am in pain. I am really depressed about all this, and to be honest, quite scared. I was never afraid of death, but rather the manner in which it came, and if I was going to suffer. At the moment it seems that I am going to suffer the rest of my life, and I read that lupus can shorten my lifespan. I am really lost right now. Sorry about the long post, I just needed to get it all out there. Can someone help me?
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