So I was unofficially dx with lupus & sjogrens about 6 months ago. I recently went back to my Lupus doctor (Lupus center of excellence in PA) and he now wants to add cellcept to my 200mg Plaquinil because based on my results on the prednisone and plaquinil and symptoms but still lower end ana he thinks it is infact lupus but still wont put it in papers yet but in 2 months when i go back probaly will (is this for insurance reasons? why are they so weird about putting the label?). Anyway I didnt know you could be on more than 1 of those types of drugs (plaquinil/cellcept) and in the midst of asking questions and being nervous I didnt get much into it... anyone else on two of these types of medications? I am also on 15mg of prednisone. Another questions is my liver levels are always elavated esspecially in my flares and he is now thinking I might have auto-immune liver disease and need a biopsy anyone else have this problem or go through this? Now onto my last question/concern. I feel very weak or like a victim almost. I keep hearing of all these "I have lupus, I'm a suvivor attitude" and I just cant get into that mode and it makes me feel stupid... I dont feel sorry for myself but I am just down you know? tired of all of this. How long does it take after the dx at least for all of you to snap out of that woe is me attitude? I want that fighter attitude. I'm just in need of support right now. I just got out of the hospital for a nasty flare... on very high doses of steriods, dilaudid pump the whole 9 yards... I know in a week or so things will get better but until then i'm pretty down.... any support and advice would greatly be appreciated. I am so glad I found dailystrength!
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