Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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Neropathy Pain

deleted_user
deleted_user
Does anyone have any problems with neropathy pain? I was diag. with Lupus in 7/2007. Around this time I was also diag. with neropathy. Well, it was only numbness at first, but now there is pain to go along with it. My nuerologists have increased my meds, but I still have this pain in my thighs. (none in my feet yet). Also, neropathy is usually link with diabetics. I do not have diabetes. I've been tested over and over again. Any help would be appreciated.

Painfully,
Andrea
deleted_user
deleted_user
Oops! It's spelled nueropathy.

Andrea
deleted_user
deleted_user
you can get nueropathy from other things besides diabetes. Mine has gone from numbness to pain too. Dr. says he thinks it is from the fibromyalgia with me. A lot of fibro people have it. marilyn
deleted_user
deleted_user
Thank you for the information. I'm going to my rummy next week. Hopefully she can give me something for the pain. What are you taking for the pain?
Andrea
deleted_user
deleted_user
After my recovery from the lupus attacking my central nervous system, I suffered from neuropathy in my legs. To this very day I am still dealing with it. I asked my rheumy if this residual neuropathy will ever go away and she told me that it may or it may not. It's been three years now. There are days when it's hardly noticeable, but during the summer it's really bad because the heat and the humidity just weighs on my body and muscles that the neuropathy just intensifies.
penny59
penny59
i take lyrica and topamax for my neuropathy pain.and numbness..it helps ....good luck...hugs .marie
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