Since age 10, growing up was very difficult for me. One night I woke up in pain and not able to move. It was like I was paralyzed. Dr.'s could never pin point what it was and linked it to a viral infection. I am still trying to figure out what that could have been. Since that time, I was suffering from arthritic issues. My feet hurt so bad, that I could only walk for an hour and then my father had to carry me on his back b/c I was not able to walk. My hands always swelled to a point i could not move them. I was in and out of children's hospitals and Dr.'s thought I may have Lupus but I didn't have all the symtoms. I was diagnosed at that time with a connective tissue disorder. At that time I took Clinerol (sp)which seemed to work. I then went into a "remission" for several yrs. As I got older I started to get more arthritic pain and my hands started to show some deformity like rhematoid arthritis. I began to see a specialist and was found to have over lapping symptoms of Lupus, Scleroderma, and Myositis (sp). It has been such a frustrating time for me not knowing and having an actual diagnosis. I recently had a health baby boy. Since then, I was having issues with my hands in that my fingers started locking and showing more deformity. It was quite a problem for me at work and trying to work on computer. I noticed I was dropping more things. I went to my specialist and found that the pregnancy actually brought out more symptoms and after 22 yrs. I was finally diagnosed with Lupus. I have the SLE type that just affects the joints/muscles at this time. I am currently taking Plaqunil and Methotrexate (sp). It is hard to say if it is working as I just started. My specialist showed me a picture in a medical book, of someone's hands who had Lupus, and I couldn't believe it. I have never seen hands that looked like mine. It is sort of bitter sweet for me as I now know what I have and there are other people out there in my same condition. I feel relieved, yet uncertain of the unknown and what I have to endure in the future. I am trying to stay positive and I look at my baby son who keeps me that way. I am trying to know all I can about Lupus and hoping to connect with people whom I can share my same experiences.
Posts You May Be Interested In
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...