
Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

deleted_user
Hello, I'm 20 years old and I've been sick for more than a year now. It started when I had vertigo at school and my legs felt like cement. I've been running a low-grade temp everyday that runs from 99-99.9F. My hair has become very thin, and I have no appetite. I have a hard time taking a shower because my legs and hands shake. One doctor told me I had panic disorder, and psychiatrists have told me no. I have had over 20 blood tests, colonoscopies, endoscopies, mris, catscans, upper gi's and no one can find out whats wrong. I've had 3 UTI's in the past year. My joints are so stiff in the morning I have a hard time getting out of bed, i use to be an avid tanner, in tanning beds until it would make me too dizzy and I developed blisters on my chest and feet. I need help, my rheumatologist is baffled and he suggests I go to NYC columbia presbyterian. I need advice on which doctor is the best. I dont trust doctors anymore, no one can give me an answer all they did was load me up on antidepressants and xanax, the tremors in my hands are still there. I was also wondering if anyone went through the same thing as me, my blood count is borderline and my ana is negative.

deleted_user
What other types of lupus-related test has your rheumatologist ran on you besides the ANA? There are three more tests that can be run to determine a lupus diagnosis which are the following: anti-DNA, anticardiolipin and anti-Smith(Sm). If your rheumatolgist has ran those tests on you and they came back inconclusive, maybe you should take up his suggestion and go to NYC Columbia Presbyterian if he feels that they may be able find a diagnosis for you.
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