I was diagnosed with per-lupus or boarderline lupus by 4 differant doctors here in Idaho where I live. I now know from Dr O. that there is no such diagnoses. I have all of the signs of lupus right down to the rash. I even have a sister who was diagnosed with it and then they turned around and said it wasn't. that it was Fibro.Which is exactly what they did to me. I have had one of the blood test ran and they said it was 0.1 below where they would quailify it as lupus.But the doctors say it is due to my factor 8 blood clotting disorder.The doctors here won't run any of the other tests on me. They have been doing this for over 6 years now. Now I have to find someone outside of Idaho either in Utah or Nevada to to the testing.These doctors here I just think don't know what they are doing. Or they want to pass me on to someone else. But my medicade won't cover anything outside of Idaho.And I now know I need a doctor that specilizes in it. Like a cancer specialist. Have any of you ran into anything like this??? Where did you find the help you needed? Was there any help for the bills a grant or anything like that? I really need some advice.
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