Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hi
My Rheumatologist just referred me to a Neurologist because of ongoing, lower body muscle spasms and loss of sensation in one leg. He said that it may or may not be related to the Lupus which has been better since taking Plaquinil. He wants to rule out ALS. I sure hope that one can be nixed ASAP. I am just getting used to the diagnosis of mild Lupus. I am wondering if anyone else is having these symptoms.
My Rheumatologist just referred me to a Neurologist because of ongoing, lower body muscle spasms and loss of sensation in one leg. He said that it may or may not be related to the Lupus which has been better since taking Plaquinil. He wants to rule out ALS. I sure hope that one can be nixed ASAP. I am just getting used to the diagnosis of mild Lupus. I am wondering if anyone else is having these symptoms.
deleted_user
I had to take an ECG, and they put the transmitters on my legs. My legs twitched so much that it was giving a false reading - I haven't been diagnosed with anything other than Lupus - You are not alone
deleted_user
Thanks, Jen. BTW, my name is Jen, too. Do you still have the twitching? I was told the actual name is called fasticulitis - not sure about the spelling. Is it all of the time or some of the time?
deleted_user
I also get twitching in my back round my shoulder blade it feels like thngs crawling under the skin. is that what you get. as my dr. says it is nothing it is driving me mad. Carmal
deleted_user
I wish I had some advise, I also have horrible spasms in my legs and shoulders, sometimes I have to rock myself to sleep. I take a muscle relaxer at night and sometimes it works.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
