Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
can you have lupas and not get the butterfly rash??
deleted_user
Yes you can. There are two main types of lupus: SLE-systemic lupus erythematosus-which affects any of the organ systems in the body, and may not show any outside manifestation on the skin. DLE- discoid lupus eythematosus- which affects the skin and usually manifests itself in the butterflyrash as well as other rashes on the body. I have SLE and have never had the butterfly rash.
deleted_user
i have lupus and ive never had the actual butterfly rash i dont believe. i am sensitive to the sun poss r/t lupus or to my meds for the lupus.
deleted_user
Nope never had the rash either. But the joint pain and organ damage is enough.
deleted_user
I never got the buterfly rash across my nose and cheeks either, but several years ago I got a horrible rash across my chest and stomach. My PCP gave me some steroids (low dose) and it didn't clear up, sent me to a dermatologist who gave me an injection and steroid cream. Both dr's were puzzled because it didn't itch or bother me and I wasn't oficially diagnosed with SLE at that time. Now that hindsight is better, we all acknowledge what it was.
deleted_user
Hi have SLE and have never has the "classic" butterfly rash. I have had a rash on my face but it wasnt a butterfly shaped rash.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
