Have had recurrent penumonia (actually how my lupus was diagnosed) and 3 bronchoscopies. Now, after many years of being ok exept with one bornchitis a year ahve had a lingering pneumonia for 8 weeks. Got my CT scan yesterday and it shows a new pattern that is either chronic bronchitis or lupus. If only lupus than I have to go on high dose prednisone or cytoxan. I am now maintained at 20 mg andthe thought of going up to 60 mg and gaining all the weight again is very distressing. Haveing been on IV cytoxan for 2 years i the past is not a likeable alternative. I will be seeing my pulmonologist next week to make a ifnal diecison but am depressed about all of this, what it means regarding my disease, how it will effect my relationship with my BF and overall self esteem. Any thought?
Posts You May Be Interested In