Have had recurrent penumonia (actually how my lupus was diagnosed) and 3 bronchoscopies. Now, after many years of being ok exept with one bornchitis a year ahve had a lingering pneumonia for 8 weeks. Got my CT scan yesterday and it shows a new pattern that is either chronic bronchitis or lupus. If only lupus than I have to go on high dose prednisone or cytoxan. I am now maintained at 20 mg andthe thought of going up to 60 mg and gaining all the weight again is very distressing. Haveing been on IV cytoxan for 2 years i the past is not a likeable alternative. I will be seeing my pulmonologist next week to make a ifnal diecison but am depressed about all of this, what it means regarding my disease, how it will effect my relationship with my BF and overall self esteem. Any thought?
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