Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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Muscles & Bones
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liver Enzymes

deleted_user
deleted_user
I wanted to ask a few questions of ya all. I have been going to doctors for 6 months now and still waiting to get a diagnosis. As stated by others, it can take a while to get a diagnosis. They have found severe damage to both knees and will need to have knee replacements. I have been going to a GI specialist the last two months and have been going through numerous test, CAT Scan, Endoscopy, Colonoscopy, Upper GI, Untra-Sound, and too many blood tests to count. The last few months, my liver enzymes have been climbing, my ALT started elevating for about four months and now the AST is also elevated. My Sed-rate and C-reactive Protein has been elevated since 1994 (Sed-rate is at 100 and C-reactive Protein is 22.46)and WBC is also elevated. I'm beginning to get scared about the blood test results because I fear where they are taking me. Can anyone tell me if this is what they are experiencing and if it is just part of the whole immune disease causing this? I'm really getting scared and finally stated this to my doctors. I have had joint pain since I was a young teen and this change in my blood work has only been going on for the last few years. I would appreciate any information you all can give.

Penny
deleted_user
deleted_user
Hi Penny, Your numbers could be elevated due to an infection. How high are your ast/alt #'s? Hang in there, I know it is tough. Are you seeing a rhuemy? Let us know.
deleted_user
deleted_user
I really appreciate information about what is going on. My ALT was at 69 a month ago...last week it was 97...AST (a month ago was 30) one week ago 53....SED rate was 100, WBC - 14.3, C-Reactive was 20.0 a month ago, now 22.3, Neutrophils is 76 and Neutrophils - absolute 8.1. I'm just getting worried about what is going on. I'm seeing a GI Specialist, Rhemy, Changed Primary Doctor (because I felt that the last one was just over looking the whole picture) and still feel like I'm trending water. I am running fevers (sometimes low grade) but there are times when I have a fever of 102. My body temp. is usually at 97 so having the cold chills and than hot flashs are driving me nuts. I can not stand the cold, especially my hands and feet. And the list can go on and on. The last year, I feel that my feet have been knocked out from under me. I never let the daily pain stop me from functioning but now I just don't have any energy. And than the family. I have two sisters that have been supportive of my ill feelings, but my mother and older sister just lack any comprehension of what I'm going through. To make matter worse, I had to send my dog to live with someone else because he wanted to but on me all the time (he is a Chocolate Lab) and he does not understand that it hurts me. That was the hardest today, to say goodbye to him. But I felt guilty not paying enough attention to him. I just want to know if someone else is dealing with the same thing.

Penny
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