I feel alone and unsupported at time. I have no one iin my life who truly understand what it is like to live with a chronic illness. sometimes I think about giving up.......then a good day comes along and I want them to last!!! Then I over do it!! I work 4 days a week to keep my life normal..I am parenting a teenage girl who gets angry at me for having lupus..............as it mkes me unavailable sometimes and my partner just has no idea. He tries his best but I can see he gets upset when I am sick. It has impacted our lives and I struggle with acceptance even though I have had lupus for 3 yrs.......well diagnosed with it then......symptoms prior to diagnosis for years....................I feel sad when I look at the person I use to be. My family are off swimming today in the lovely sunny day. I can't move off the couch due to fatigue and the sun is such a trigger no matter how much sun cream I lather on!!!!........isolated and lonely.............
Posts You May Be Interested In
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??