I like my "drug cocktail" regimen. It's doing what it's supposed to do for me...:)

How long have you been on Plaquenil? It takes a really long time to make any difference. If you search my posts, you'll see that I posted A LOT about Plaquenil not working for me. I've been on it 5 months now and I am just now starting to feel any real improvement. I'm still flaring, but the pain is more manageable and I actually have some days when I'm not in pain! Imagine that! I really believed that day would never come. If you haven't been on Plaquenil for at least 6 months, hang in there. It will help. I know what you're going through. I wish you speedy relief! :)

i dont have a cocktail. i wish (sometimes) that i would get a doctor that would care enough to put me on lupus meds. all i have gatten in anti-depressants and i refuse to take them when my depression is nothing else but marraige problems. i hear of people having pills that DO infact work, i have nothing but IBprofin. granted i'm not in as much pain as others, but my lupus is slowly progressing. (thank god for that) but i still hurt and my doctor (who ever it maybe next month) doesnt care! so i'm not happy with the cocktail i'm not taking!

mind you i hate pill! but if it will help without hurting then let me have at!

I agree, I have been on so many I have no idea what, if any work. And right now I can't be on any due to blood thinners, so my joints really ache. But I must say Prednisone is the best, makes me feel like I can conquer the world, no wonder athletes like steriods. But god forbid you tell me I look fat, I'll beat you to death then cry for an hour! Very emotional drug! No good answer to this disease, now I don't know what to do either!

i was on pedizone for 1 week. The best week in the last 3 years!!!But "The Orge" otherwise known as Dr. Bridges will not let me have it again because of the side effects.
I am on coumadin so NO NSAD's like ibprofan or alieve etc. I got told to take Tylenol extra HA M&M's would work better.
Sarina, I can understand why you don't want to take the anti-depressants however maybe if you took them for a short time and felt a little better you could work on the underlying problem in you marrage.You don't have to stay on them forever.
I choose not to take pain meds right now as the pain is still at a level I can deal with I am saving them for the future when I cannot cope with it any more. I do not want to build up a tolerance to them now so that they are less affective when I really need them.DebPS Please excuse the typo's my hands are numb today and my left wrist is not at it's best.

yep. it's hard for me to tell if I'm in remission or if the meds are just really working.

I'm on plaqueinil and methetrexate and that's all.

I also did lots of acupuncture and Chinese herbs.

I want to go off my meds but life has been so stressful since I began feeling better, we've been waiting for the other shoe to drop...

I am taking so many drugs I don't know anymore. Plaquinel, Prednisone, Immuran, Evenox, Mobic, for a total of 17 meds per day...ugg

I have been on Plaquinel for about 3 years. It took a full 5 1/2 months to start working, but when it did I eventually got back my energy and my joints are much better. I still had some CNS problem that the plaquinel didn't get rid of so I took prednisone for a while too and my rheumatologist eventally added methotraxate last year and stopped the prednisone. I feel pretty good most of the time now and am able to get on with my life. Hope it stays this way. Good luck.