Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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I have a problem

deleted_user
deleted_user
Hello fellow DS. I really have problem. I was so tired ot being sick of this. My joint hurts back started yesterday.This is what I felt when I was not yet diagnose of lupus. As in, this really reminds me when I could hardly get up in the bed bec. of my joints pain. When I have that prednisone it all gone but then I suffer horrible side effects. Ok, I hate both...the side effects of Preds and the joints pain. Last tuesday I stopped taking preds for docs. order and thats what I got joints pain on thursday. Is there anyone outthere that when they stop taking prednisone and then their joints pain will come back? I really dont know what to do. If I am going to tell my doc and then I will suffer the side effect of prednisone forever I guess....hohohoho I am so tired of being sick.
deleted_user
deleted_user
I have additional ques. Is plaquenil should suppose to help the joints pain? I am taking plaquenil too....
deleted_user
deleted_user
I felt like a new woman on pred. My husband felt like he had his wife back! Unfortunately, they don't want to keep you on it. I am in the same position you are in. I hurt so bad without it. Michelle
deleted_user
deleted_user
I have been on plaquenil for 8 weeks now(it takes bout that long to start working) and it has helped with the joint pain, and most of all the fatigue. I feel more like my old self being able to do things, like work. I haven't had the need to take as much ibuprophen as I was taking.
But, everyone is different.
deleted_user
deleted_user
I take Prednisone every day but a very low dosage, only 3mg a day. After they got everything under control, I was dropped to that dose for maintenance. I don't have any side effects at this point and it keeps things under control most of the time. I also take Plaquenil. I have been on both for almost 5 years and so far so good. I still get flares but nothing like when I first got sick. If I do miss taking the prednisone I can tell the difference.
deleted_user
deleted_user
Hello prednisone saved my life but almost destroyed my eye sight. I have been on and off cytoxen 5 times in the last 7 years. Doc just started me on celcept 2000 mg a day helps my joints but stomach issues UG. See if you have a Doc that deals with LUPS like i do here in AZ. It took them 1 1/2 years to DX me and it was too late for my kidneys. WE HAVE TO TAKE CHARGE OF OUR OWN MEDICAL CARE keep push the questions
deleted_user
deleted_user
Plaquinil gave me my life back! There are still flares, but they are not a severe as before and my joints are not as sore and swollen. Plus, I have had NO side effects. i would DEFININITELY recommend it!
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