Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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Has this happened to you?

deleted_user
deleted_user
Months ago me and my husband moved, from the city to the country, ive met a few people here and some people have heard of lupus, but others are not quite sure what it is, i try my best to keep positive wen people ask questions but i have had some ridiculous ones, like today, one woman was talking about gardening, than she mentioned if u can catch lupus from manure, i was horrified, than one asked me 'is it like leaukemia? oh and this ones a winner, 'its like aids'....im so shocked at how ridiculous people can be........sometimes i just cant believe half the things that some people come out and say......
Has it happened to you?
deleted_user
deleted_user
Not yet but I am looking forward to it cause I have some replys ready.
Most of the people I know are in the medical field so I don't get a lot of wierd things like that but I do get the "Are you taking your med's?" and some "Do you know what will happen if you don't take the coumadin?" as if 3 bouts of lung clots did not teach me a thing.Some times the RNs think the lab tech walked in off the street and went to work running the tests they forget I had to go to school too.My doctor keeps trying to talk to me like I have no clue. I guess its better to have it over explained than not at all......Deb
deleted_user
deleted_user
I haven't had anything like you describe. Most people I mention it to just want to know if it's contaigous. That seems like such a weird question to me, but I guess if you know nothing about lupus, it makes sense to ask. If I ever get a weird comment like you did, I might lose it right there!!
deleted_user
deleted_user
OH YES THAT IS WHY LUPUS AWARENESS IS SO IMPORTANT.

RUDE COMMENTS
#1 IT LOOKS LIKE YOU HAVE THIRD DEGREE VD THAT ONE I WILL NEVER FORGET.
#2 WERE YOU IN A FIRE?
#3 IS IT CONTAGIOUS?
#4 PEOPLE JUST LOOKING AT YOU EVEN ADULTS.
I ALSO WOULD LIKE TO WERE A SHIRT THAT SAY'S I AM NOT FAT I AM JUST ON PREDNISONE.
IF YOU LIKE THEM GIVE THEM A BOOK IF YOU DO NOT SAY YES IT IS CONTAGIOUS.LOL
MES.YANKSTER
deleted_user
deleted_user
YEAH! like everyday when you live in hickvill. even doctors from here bearly even know what it is. i live in a VERY small town in oregon. and let me tell you people around here fit some of the "you might be a red neck" jokes! i very well know you problem. luckly i stopped telling people as much. there are alot of elder people around here and they are more polite about their questions. but yeah people can be very dumb! ha ha! ~Sarina*
deleted_user
deleted_user
I've had that happen already as well. I'm still in high school so you can already tell I've gotten some pretty dumb questions. Mostly people think you can get it if I touch you. I keep telling them if it was like that everyone would have it and everyone would be able to get cured. Many just don't understand what they have never been through. I guess the only way for them to learn is for them to ask questions that seem stupid to us.
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