Is hard to get everyone in my family on the same page. Is it my fault because I don't speak about my lupus. I have joint pains sometimes they are not pains but a throbbing ach so bad i start banging my limbs on things to releive some pressure. When I really need a break its hard to get them ont he same page. I don't want to be looked at all the time as the poor Dominique or Poor sickly person. But I want some pauses once in a while. My fatigue is distoying my life socially and emotionally. I can't make it out of bed some mornings. And if I'm flaring then forget it. But everyone tells me stop being lazy. or nothing is wrong. I hate it the most when people say things like . I get that all the time or I had the flu last week and I still managed to get up. Or you ain't dying. It makes me upset. Maybe able to curse sometimes. I can deal with lupus but not with the comments of everyone else.
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