Is hard to get everyone in my family on the same page. Is it my fault because I don't speak about my lupus. I have joint pains sometimes they are not pains but a throbbing ach so bad i start banging my limbs on things to releive some pressure. When I really need a break its hard to get them ont he same page. I don't want to be looked at all the time as the poor Dominique or Poor sickly person. But I want some pauses once in a while. My fatigue is distoying my life socially and emotionally. I can't make it out of bed some mornings. And if I'm flaring then forget it. But everyone tells me stop being lazy. or nothing is wrong. I hate it the most when people say things like . I get that all the time or I had the flu last week and I still managed to get up. Or you ain't dying. It makes me upset. Maybe able to curse sometimes. I can deal with lupus but not with the comments of everyone else.
Posts You May Be Interested In
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...