I was diagnosed last december with raynauds/lupus although been suffering for about 5 years but not diagnosed. My energy levels are so low, all my joints ache, the pain is unbearable at times, i have been admitted into hospital as the pain was so intense, my hands had turned black and had no feeling in them for a month, couldnt even pick up the simplest of things...this last month has been one of the worst ever, the pain almost constant,my hands especially my right hand is going blue is painful at the moment but the numbness is starting again...the dizziness well, almost everyday and the amount of times ive fallen over i cant count...i spend much of my days sleeping right now cos of the dizziness...when i do go to work, i end up in so much pain and unable to move for days after...i often go to the bathroom to cry cos i dont want my fiance to see me crying, i am trying to bottle things up a lot cos i feel that im seen as moaning all the time even though he never says anything so why do i just feel like im a burden...and im stubborn too which doesnt help, i try to do things that i know i shouldnt be doing and get hurt in the process. I dont want to be asking for help all the time....and the depression, omg im just so emotional all the time....just need some friends who know what im going through, so we can chat about lupus and other things, to laugh, shout n yeah sometimes cry...mind my eyes are sore from the crying....any advice about pain pls would be grateful ....
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