hi lups. i took cellcept for about 3 months but i guess it didn't work because after that i was put on imuran or azothiaprine. now that's on hold and i'm taking plaquenil! i've almost been through them all! good luck!

Check the treatment section for more info on cellcept. it has comprehensive info on all meds people here on line are taking..I find it a good place to start.

I've been through cellcept and it didn't work for me either. Neither did methotrexate,plaquinel or any of the others. I'm on Enbrel once a week injections with 4mg a day of medrol.

i have not had a transplant and i take cellept.ive been on it for about a yr and a half.imuran sent me straight to the hospital.i have no idea how long i will be on it.but things could be worse. hugs ....marie

Hi, I have been on Cellcept now for almost 2 years. I did the methotrexate for almost 3 years. The third year on methotrexate was extremly rough on me. My Cellcept has been a great choice for me at this point anyway. I take 2000mg daily right now. I just take one month at a time and then chat things with my rhumey. I hope & pray you have good medical folks taking care of you with your combined decisions. For me, mental security is just as important as medical/physical. My docs keep each other informed & contact each other when necessary. And no decisions are made for my treatments with out input from me. Remember it is your body & your life, so be educated and always active in your care. God Bless!

I tried cellcept, but it did not work for me. it just made me sick all the time.

I started with Prednisone, then Plaquenil, then Methotrexate (high liver functions), then Imuran, then CellCept. I took CellCept for about 2 years. It helped some aspects of the disease, but not others. My swallowing problems worsened but my lung disease remained the same. The daily aches and pains were not under control. It did make my stomach very upset. One thing you all should know: the liquid CellCept is a couple hundred dollars less expensive than the tablets are. Your copay with insurance may be less even. Also, CellCept's manufacturer has an assistance program if you can't afford the medicine.

I am now on Rituxan and it has been helping for 4 months, but I think it might be wearing off now.

Best of luck to you.

hi-

I've been on it for 2 months now for lupus, not for any transplants. It's working really well- all my levels are back to normal except for my DSDNA but my rheum said some people always have high levels no matter what. I'm still on prednisone, but I've dropped from 15 mgs to 12.5 mgs and I'm going to drop again after I get back from a work trip.

My rheum said that for some of her patients, cellcept works as well as prednisone but without all the bad side effects (except you shouldn't get pregnant on it, it's known to cause birth defects). That seems to be the case for me so far, but everyone is different. Her goal is that I'll be able to go completely off prednisone and then after 3-6 months -if I'm stable- go off the cellcept too. Time will tell if my body behaves according to plan....

Like other people said, cellcept is SUPER EXPENSIVE and man those pills are big!!

good luck!
K