HI,I WAS WONDERING IF ANYONE CAN HELP WITH WITH MY LATEST DIAGNOSIS...APS...I AM COMPLETELY BAFFLED... I AM A FACTOR 8 DEFECIENT HEMOPHILIAC,[ IT MEANS I AM MISSING FACTOR 8,A CLOTTING AGENT] VERY RARE FOR A FEMALE BUT IT HAPPENS....I WENT FOR AN APPOINTMENT THURS AT THE HEMOPHILIA FOUNDATION FOR A CLOTTING TIME AND A PLAN FOR MY UPCOMING HAND SURGERY,TO DECIDE IF I WOULD NEED FACTOR 8 REPLACEMENT [COMES FROM 100 DONORS]OR DDAVP[MADE IN A LAB] MY DR WAS OUT OF TOWN SO I SAW A NEW DR...HE INFORMED ME THAT MY LAST WORK UP SHOWED APS ...THE DR SAYS HE HAS NEVER SEEN THIS BEFORE SO HE NEEDS TO RESEARCH AND GET BACK TO ME...HOW CAN I HAVE BOTH????IF ONE CAUSES THE BLOOD TO BE THICK AND THE OTHER CAUSES IT NOT TO CLOT,HOW CAN THEY BOTH HAPPEN IN THE SAME BODY? HOW WILL THIS AFFECT ME DURING THE SURGERY? NOT TO MENTION MY EVERYDAY LIFE? I CANNOT TAKE BLOOD THINNERS BECAUSE OF THE HEMOPHILIA SO NEEDLESS TO SAY I AM SCARED... HE SAID THAT SINCE I WILL BE GIVEN A CLOTTING AGENT DURING SURGERY I WILL BE AT A HIGH RISK FOR A DVT AND BLOOD CLOT IN THE LUNG OR STROKE[I HAVE ALREADY HAD 4 TIAS]...IF ANYONE KNOWS ANYTHING PLEASE LET ME KNOW.... THANKS, HELYN
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