
Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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I have been suffering from terrible chronic fatigue, it's not just your ordinary fatigue. I sleep all day. the last couple of days I was not able to get up, not even to take a shower until 8 or 10 at night. I literally cannot wake up, and I am afraid I might slip into a coma, that's how tried I am. I am recently diagnose with lupus (2 mo) I am taking 10 mg of predisone, and vit D 50,000 units weekly. That's all I'm taking now for the lupus, besides my pain meds, which are soma and lortab. I have even tried cutting back on them, afraid I had accidentally overdosed, but that was not the case. I was hoping, praying that some has been through this before, and can give me some advice on what to do. It is getting to the point where... not only is it scary, but I am missing out on my life. I have two children who need me, and I have found out more info. on the site thab I have from my own doctors.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
The lupus itself can really knock you on your butt and the pain meds often have that same side effect. Ask the doctor to switch your pain meds to something long lasting (there are controlled release pain meds that are very effective with less side effects). Alot of times it takes a few months to get medication straightened out, hang in there, I'm praying for you. xoxoxLyn
It's a wonderful new site I created for support and venting, etc. I hope you'll check it out, and hope to see you there! You are NOT ALONE! Never forget that, even tho it seems at times, you feel like the only one. But, you aren't. Your in my thoughts and prayers... HUGS~Kimberly
Sometimes I am so tiered I sleep around the clock. The WalMart brand Super B Complex keeps me able to move.
Also tell your doctor about it just to be safe.....Deb
Either my doctor was an idiot or I was not communicating very well but somehow the idea that I was so dazed never seemed to get through to her.
Once I took myself off all sedating medications it still took me weeks to feel aware of life. I think the withdrawl symptoms acted with the lupus to cause that disoriented feeling. Either way it is worth going off the meds for an extended trial period as long as you do it safely with a doctor's approval. If your current doctor will not help you consider trying a new doctor.
One thing I can tell you is that with time the pain becomes more tolerable and it is easier to live without the medications.
Also make sure you are seeing a doctor who actually knows something about lupus. Some of the ones I saw in the past were clueless on the subject.