Ur not alone, when i first found out I had lupus I was tired and my joints hurt like hell. For a whole yr I had no meds. I think u need to ask ur doc to up ur med some and that should help the bad part of going up on the med u take is weight gain, and I mean a lot of weight gain. I take 60 mg of prednisone and that's low, I use to take 1000mg. Ur tired because u might be doing too much. Autoimmune take what lil energy u have so u have to utilize it. Don't wake up and cuz ur feeling good go out and party, lol you can have fun but just limit urself k hun, It will be okay. I use to feel just like u when I first found out I had lupus, it took some awesome friends to make me wake up. I live by this everyday of my life. If u give in to the disease it will kill u. Live life to the fullest and don't over due urself.

Hi Hon,
The lupus itself can really knock you on your butt and the pain meds often have that same side effect. Ask the doctor to switch your pain meds to something long lasting (there are controlled release pain meds that are very effective with less side effects). Alot of times it takes a few months to get medication straightened out, hang in there, I'm praying for you. xoxoxLyn

Hi Debra,oh i know how you feel i realy do,and i know what you mean when you say it is scary and hard to explain this tiredness.Will be thinking of you.

Hello Debra, I'd like to invite you and all others with lupus to www.lupusbutterflies.ning.com

It's a wonderful new site I created for support and venting, etc. I hope you'll check it out, and hope to see you there! You are NOT ALONE! Never forget that, even tho it seems at times, you feel like the only one. But, you aren't. Your in my thoughts and prayers... HUGS~Kimberly

Hi....like yourself my Lupus has had me down to just sleeping my life away. It still does that when I'm in a flare. I'd suggest getting to see your doc and see if there isn't something else you can try as far as meds go. I know a lot of painkillers can make you sleepy or drowsy too. But Lupus itself can totally take away all your energy. I've had times where I'll sleep all day and all night and still be tired. I hope you get to feeling better.

I do hope you will feel better soon. You just need to adjust to the meds. Tell your Dr everything. Perhaps he'll switch meds. Predisone worked for me with the pain and the tiredness. Now somedays I just can't stop. That was a problem for me. (Way better than the pain I assure you) but the Dr gave me xanax and it has seemed to even everything out.. God Bless you!

So sorry you are feeling this way, are you seeing a rheumy? My personal oppinion is it could be a combination of the pain meds and the lupus. If there is anyway to continue to cut back on the pain meds, I would try. I know it is tough. Are you on plaquinel or any other lupus meds? Hang in there....

Try taking a B vit. complex.It helps me.
Sometimes I am so tiered I sleep around the clock. The WalMart brand Super B Complex keeps me able to move.
Also tell your doctor about it just to be safe.....Deb

hi i went through the same thing and i still go through the whole sleepy can't get out bed mood i think its one of the symptoms

Soma is a very strong drug and can make you VERY sleepy. If you need a muscle relaxer, ask for a different one. I take Flexeril, only to fall asleep, but there are others, like Robaxin. If you can live without a muscle relaxer that would be better. You Lortab may stop working after awhile. There are other long -acting pain meds that may help you. I was on Duragesic, a patch that you change every 3 days. That way I wasn't swallowing pills all day and got a more consistant pain relief. They will stop working eventualy to, but I got 2 years out of it. Good luck and if you ever need to talk just look me up. :) C

I had gone through this for years before I found out about the lupus and finally decided to take myself off all the pain meds after I unexpectedly woke up in the hospital one morning.
Either my doctor was an idiot or I was not communicating very well but somehow the idea that I was so dazed never seemed to get through to her.

Once I took myself off all sedating medications it still took me weeks to feel aware of life. I think the withdrawl symptoms acted with the lupus to cause that disoriented feeling. Either way it is worth going off the meds for an extended trial period as long as you do it safely with a doctor's approval. If your current doctor will not help you consider trying a new doctor.

One thing I can tell you is that with time the pain becomes more tolerable and it is easier to live without the medications.

Also make sure you are seeing a doctor who actually knows something about lupus. Some of the ones I saw in the past were clueless on the subject.