Living with NF Community Group

This group is designed for those who have NF, family members with NF or if you have friends with NF. We are all here to support each other like one big FAMILY.

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Personal Challenges
/ Living with NF Support Group

Introduce yourself to the Group

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deleted_user
Hi My name is Kim and I have NF1 Inheirted from my mother .
Have Three daughters...two of them also have NF1.
No major problems for me just bumps and lumps from aging...lol

My other two daughers have had surgeries to remove tumors...my youngest has a MAJOR plexiform turmor doctors tried to remove and did a botch job!
Nothing GOD can't fix.

That about sums it up for me.