What to expect
Is there anyone out there that can tell me what I can expect of my 16-month-old daughter with this KT-syndrome disease? She doesn't seem to have the large leg like so many others I've seen. Her affected leg is actually smaller. She doesn't have a problem with it much. In fact, she started walking earlier than normal because it was painful for her to crawl on her knee. The knee is what has been the worst for her through her short little life. Do we do laser surgery to attempt to remove the varicose veins and/or darkened skin? I just wish there was a doctor around here that could help me with this. If anyone has any stories it would greatly help.
Posts You May Be Interested In:
I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??