Of all my communties we don't have much to say. Is there anyone out there who has things they want to get out there? I feel like we should be talking more about how we feel. Don't get me wrong I love the support but sometimes I get mad because IC is so misunderstood by doctors and even family. I think we need more say in how we are being treated and how disabiling IC is in everything we do. I have gotten sugestions from you but when I talk to my doctor he just blows me off. We have 1 uro for 3 counties so there is not much choice I have to humor him., even though I have tried everything he wants me to so he can rule it out it just goes over his head when I say anything. Does anyone have any thing that bugs them?
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