I didnt know there was a support group here. IC is a miserable condition. I had it in my early thirties, had surgery, meds, instills. Then it went away until about 5 yrs ago. And its back. I take vesicare. Had a cysco done. I was put on Elmiron and it didnt work. My hair was falling out, and I was sick all the time. I had blood in my stools. Then I had to go to a Gasteronologist, and have a colonoscopy done. Its been a nightmare. I dont know what to do now. My other options are....stretching the bladder and having instills. I am sick of doctors and procedures. I have to say the Elmiron made me worst. My doc said it only works in 10% of people. The cost is 400.00 a month. Its so frustrating. I can live the way it is, or go have more stuff done. I quit my job due to pain, and got turned down for disability. Not sure what my next step will be.
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