I am a Husband to someone with IC. I don't have the disease, but being married to someone who does takes it's toll. The many doctors visits, running to get any type of Rx that we think will work, the treatments and the late nights of time spent sitting in the bathroom while my wife sits in the shower trying to pee. I don't know exactly how the disease feels, and probably never will. I ask my wife to tell me and through tears she describes it to me. I few and far between get to see my wife for the gorgeous person she is...it feels like as of late with her bi-lateral stimulation being less and less effective she finds herself in more and more pain, she's been on every treatment from DMSO, to interstims and the one medicine that is said to be most effective- elmiron she's allergic to. The result of this is her usually taking out that pain and frustration on the person she's closest to...me. I don't want this to seem as though I'm whining, because like I say, I know how horrible this disease is, often times she wishes it were something more identifiable like cancer, at lease there are more options for that. l am simply praying that someone on this forum and more importantly a spouse of someone on this forum can talk to me and help me to understand and how to be a better husband to my wife. Thank you everyone for your help, and letting me vent. God Bless.
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