Interstitial Cystitis (IC) Support Group
Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.
I have been getting rimso insillments for the last 4 weeks the goal is to put 100cc in for 30 mins. They started of slow with 50cc then 60cc I wasn't able to hold the the full thirty mins but I did not have a bad reaction. Last week they went for 80cc and because my bladder is so small it hurt very bad and caused a flare up. I was thinking who thought up 100cc why put us in pain and cause us not to try instillations. Many of you say they just cause pain and flare ups. I think they should just put in what we can handel for whatever time a small amount for a longer time with little pain would help more. Thankfully my doctor agrees and is not going to force to much at one time. Does anyone have any comment on this Janice
whitsinn
Oh no! I go for my first rimso treatment today! I sure hope I can hold it! I just had the bladder distention on Tuesday, and I am still in pain from having that done. *sigh* I wish this would just go away. . .
deleted_user
I am surprised they didn't put your 1st treatment in when you the distention done. Just do the best you can the doc should understand. I wish you luck let me know how it goes
Join the Conversation
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
