Interstitial Cystitis (IC) Support Group
Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.
I have been getting rimso insillments for the last 4 weeks the goal is to put 100cc in for 30 mins. They started of slow with 50cc then 60cc I wasn't able to hold the the full thirty mins but I did not have a bad reaction. Last week they went for 80cc and because my bladder is so small it hurt very bad and caused a flare up. I was thinking who thought up 100cc why put us in pain and cause us not to try instillations. Many of you say they just cause pain and flare ups. I think they should just put in what we can handel for whatever time a small amount for a longer time with little pain would help more. Thankfully my doctor agrees and is not going to force to much at one time. Does anyone have any comment on this Janice
whitsinn
Oh no! I go for my first rimso treatment today! I sure hope I can hold it! I just had the bladder distention on Tuesday, and I am still in pain from having that done. *sigh* I wish this would just go away. . .
deleted_user
I am surprised they didn't put your 1st treatment in when you the distention done. Just do the best you can the doc should understand. I wish you luck let me know how it goes
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
