Interstitial Cystitis (IC) Support Group
Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.
I am sooo miserable. I feel like I have to go severly badly ALL the time, even after i've just gone. Also I have these spasms(not painful) that make me feel like I'm going to leak. I've been taking elmiron now for about 2 months and haven't noticed any benefit(I know it can take a long time). Have to go back to my urologist in a couple of wks and he will probably send me to a dr that does "interstim", advise PLEASE!! It is very expensive, and then what if it doesn't work? Does anyone out there have an interstim??
deleted_user
have not heard of that, and yes, Elmiron is expensive and takes a long time to work. Has he diagnose you yet with IC? I was diagnose by doing a hyperdistention of the bladder. They put you under anestesia and blow up your bladder and run dyes thru it and then release them. It's painful for a day or two after, but it got rid of my pain for many months. I'm also on Amitryptiline which coats the bladder lining... see if you can start taking that...
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
