I battled endometriosis for 5 years. I had multiple surgeries, including the removal of my uterus and cervix. I was on every treatment for endo. I've taken Lupron, Danazol, progesterone, estrogen, more birth control pills than I could name(even after my hyst). I was 19 when I was diagnosed and I had been having chronic pelvic pain since 12. I didn't have insurance for 3 of those years. I filed bankrupcy on $60,000 in medical bills. A few months after hurricaine Katrina, my boyfriend and I moved to Mississippi because we knew places were hiring for construction and offering insurance. We lived in Nebraska before. We got married at the courthouse and had and had a small reception with just our families. Now I have insurance, but I live 17 hours from my family and friends, my support group. I finally went to a pelvic pain specialist in Alabama. He diagnosed me with IC, pelvic congestion syndrome, pelvic floor spasms, and vulvodynia. I take so many pills. With my shitty insurance, I pay $400 out of pocket each month. I hit my limit on my insurance for my physical therapy for the pelvic floor. With the diet and pt I was starting to feel a little better. I'm so tired of eating the same things!!!!!! Before all of this, my passion was cooking... It's incredibly hard for me to cook because of the seasonings and sauces restrictions. I'm very thin and I've lost more weight than I can handle. I'm looking boney and sick. I've come up with a few good recipies, but I'm tired of eating them all the time. I'm having intestinal problems and have an appointment in September. In the mean time, I've been told to give up my dairy. I feel so limited in my food choices, there aren't many health food stores in Mississippi. I know you have to try things to see if it affects you, but I have twice with very bad results. I've had such a hard time finding a dr that will actually listen to me, that I just let everything go for so long. I'm so miserable, I just don't know if I have the strength to keep fighting. If there is anything acting right in my body, please point it out. I really need some support. I feel really alone.
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