Interstitial Cystitis (IC) Support Group

Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.

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Kidneys & Bladder
/ Interstitial Cystitis (IC) Support Group

Dealing with depression

BeckyK
BeckyK
After being diagnosed with IC I was so frustrated. I felt like I could not eat anything and lost a bit of myself. But then I read what I could and got a IC cookbook. I started to feel better, more in control. After having my boys my symptoms got worse, my marriage started to go down hill, I just don't know what to do anymore.
deleted_user
deleted_user
Get the book "Along the Healing Path- Recovering from IC" by Catherine Simone. I plan on getting it tomorrow. I am in so much pain today. All I want to do is cry. People do not understand how painful this is. Try the web site Even better now.com I am a different person because of this condition. There is so much I want to do, but between the pain and fatigue I just can't do what I want. It is definitely very depressing!
deleted_user
deleted_user
Hi Becky,

Don't get down, your life is so precious even though we feel so bad. We have a purpose here, on this site talking with each other, and in the world. YOU made me feel better, im not the only depressed one in the world. THANK YOU for making me feel not so alone. You might have the pain, but dont let it have you... we are all here for you
deleted_user
deleted_user
Hi Becky, I'm another Becky. I've had IC for 18 years. I went through all the things you have gone through. I just want to say, it WILL get better. You are taking the right steps. Empower yourself....get Catherine Simone's books...there are three of them....Amazon.com...many other good books, too...just type in "interstitial cystitis" in the search engine. Tell you husband that things will get better after you figure you own particular path to healing that works for you. If he loves you, he'll stick. Mine did, and he wasn't a happy camper, either. But our men do not know when it will be their turn to have problems. I wish you the best of luck, I hope you see this as I see you posted in January. Becky E.
deleted_user
deleted_user
Continue to be strong... There are lots of ways of staying in control. I know it's life - changing... I've been married 2 years and have a 2 year old daughter. I was diagnosed last year... it's still hard to maintain the IC diet and go out and do family fun things, keep the conversations flowing... keep them informed so they are not in the dark as to why you don't feel like doing something... The more you explain, the more they will understand...
deleted_user
deleted_user
YOU MIGHT ASK YOUR DR. FOR SOMETNIG FOR DEPRESSION. THERE IS ALSO ST. JOHNS' WORT. IT IS WITH THE VITS. AND IS VERY CHEAP. I HOPE YOU FEEL BETTER.
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