Interstitial Cystitis (IC) Support Group

Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.

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deleted_user 12/08/2007

Looking for IC people to give and get support from. It is crazy how IC can mess up your llife. Wishing all of you the best.

deleted_user 12/08/2007

yeah-it sucks! i've had bladder issues since i was 8 ish years old....had a cysto and bladder distention in august-doing much better. how about you?

JackiRenee 12/09/2007

Hi, I'm in a bad flare up right now AHHHH!!! I ate peanut butter two days ago and I think my hormones are causing alot of problems.It's so hard to deal with IC.The pressure i have some days is soooo BAD!!!
It was bad enough having TMJ and Fibro but this has really taken alot out of me.Not being able to eat much really makes me depressed some days.I keep saying prayers for a cure.
I hope today will be a good day for you.Take care Jacki

deleted_user 12/19/2007

i just found out i have IC do you believe it can be triggered by stress, i just lost my mom in Nov and i've had my worst attacks while she was in the hospital and now that she is gone it continues to be really bad going to a new doctor today hopfully he will be able to help.

deleted_user 12/19/2007

it sucks hurting like hell. im thinking about botox injection into the bladder. hope you feel alittle better. hang in there.

deleted_user 12/19/2007

I would like to be your friend, I am 15 years into IC although misdiagnosed for 10 of it. It is crazy like you say how it messes with your life and unfortunately I have no family left and my husband is still in denial after 15 years. Well 10 of the years "it was all in my head" I have no support system and would love to develop relationships with others who I can provide support and others can support me. I feel very alone.

deleted_user 12/20/2007

hi i hope you are having a good day ? Ive had ic for 18 yrs now and new treatment are few and far between .There are new treatments every yr but some help some dont.

deleted_user 01/06/2008

Wow didnt acure to me that anyone else had this disease. I just put up with it Dumb Ha.
Mine is slowly getting worse so will have to look into it more. We are moving from New Zealand to Australia so will get it sorted over there

deleted_user 02/12/2008

I could use some support from people who know it's not all "Just in my head" I was starting to think I was a hypocondriac...

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