
Hypothyroidism Support Group
Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...

deleted_user
Hello. First off, I am not yet diagnosed. Have had enlarged thyroid, off and on, for almost 7 years with varying degrees of symptoms: Low body temp; terrible periods (have now had a hysterectomy); extreme to moderate tiredness; weak muscles including mouth, tongue - which also feels thicker - (hence slower speech), arms legs; dry skin; brittle nails; lose hair at time when symptoms are worse than usual; eyes feel "tight" .. don't know how else to describe it. I have been to a neurologist (4 years ago) and everything was fine; have had my TSH levels checked and were apparently in the normal range. However, every since my very first "crash" almost 7 years ago, I have had ups and downs. My symptoms are usually much worse after any particularly stressful time (now). I am going back to the doctor in December to try and get more testing done as it seems the older I am getting (50) the more pronounced and more often these "crashes" are happening. I think I am just use to being tired all the time, but the weak arms and hands, legs, jaws, mouth and tongue (which feels too big for my mouth at times) and enlarged thyroid and feeling cold are pretty bad right now. My main question to anyone out there is: anyone else have mouth/tongue problems and what tests should I have taken?
Thanks.
Thanks.
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Beckeroo
EXACTLY! I had everyone of those symptoms! Have you had a CT scan of your thyroid? It is "normal" for patients with thyroid problems to experience the swelling, unswelling of the thyroid. THE EYE PROBLEM you describe! I started having that problem when I first noticed the "little" lump in my throat where the thyroid was. They did a CT scan, found I had nodules. They did a fine needle biopsy, found no cancer. Put me on some form of Synthroid (no doubt generic, with what I'm finding out now) and the "little" lump grew to 8cm! By the time they removed it five years later, this lump had grow down my collarbone and up to about 1/2 inch from my ear. My esophagus was in a C shape! I had seeked out several different doctors asking for help. One told me "well, if it bothers you, we can take it out, if it doesn't we can leave it in"! WHAT? By the time I found a doctor that was concerned enough to help me the surgeon says, "Why did they wait until this was SO BIG to want it removed?" Yeah, my question exactly! This caused other problems. The growth was so big that when my thyroid (I had previously had one side removed, so this removed the rest) was removed, my parathyroid glands were damaged which gave me a whole new set of problems. Please don't wait under seven years before finding a competent doctor that is willing to listen to you and give you some relief!
My advice to you is have the dr. you are seeing do every thyroid test he can run and refer you to an endocrinologist. Even if the TSH and stuff come back normal, it could be something else to do with the endocrine system. It could also be the pituitary, although from what you describe it sounds like classic hypothyroid.
Bee