I'm currently waiting for a surgery date..but would just like to have a "random" discussion about all of the symptoms that seem to come with this disease. Share anything and everything about yours and I shall do the same. :) It seems many of them have stayed throughout my journey and the last several months have been thee worst. Although one day I'll have a slight pain in my hip..diminishes after a week...then the same side being my knee a week later. Pain always comes when my levels of calcium seem to rise during any situation at times. Especially the shoulders! I literally know now when I'm about have an episode! I can't plan on when it's going to happen...it just happens! I have tried to pay attention to what is the "cause" whether after eating..walking..taking the kids to there sports....I simply am at a loss that I simply don't know when it's going to happen. I have realized although mornings are slow lately for me...Most of the time I'm "ok"... Not good..but ok. :) I experience Radom moments usually anytime in the afternoon and nights sometimes are unbearable. I loved my evening walks around the harbor and always looked forward to the evenings. Now I almost dread them knowing it may be a rough night. The doctor and I are aware of the beginning of "kidney" disorders with me needing to basically shove a hose down my throat and continue to funnel water daily! Lol At times I feel water is the only thing keeping me alive! Loss of appetite and weight loss even though I continue to force myself to eat no matter how hard it seems at times. Being 5'8 at 126.... Is not where I want to be at 37 years old! My teenage girls weigh more than me and they are at a healthy weight. Random pains...bottom left foot..( possibly from kidney issues) morning stomach issues...always feel pain in muscles..back..neck...Althpugh I hate to say I seem to be finding it the norm after having it for several months. Two ER visits before being diagnosed. One for major stomache issues 8 months ago when the beginning of all the major symptoms began. Then one visit where I honestly believed I may have been having a heart attack! I was only concerned with this more knowing "heart disease" is in our family and thought I should go just to be sure. Of course the only thing that showed up was "high blood pressure" and elevated Calcium levels!!! Every single test I have taken has always showed calcium levels above normal...my first being 11.5. Which they shrugged off as a mistake...Believe me I have been tested for anything and everything. They knew me by my first name walking into receive my bloodwork. Lol It has been a struggle but finally an answer. Simple procedure I hear....Just trying to light a fire under my medical team to have the surgery ASAP! They have confirmed it...know what's causing the problem...can understand why we are waiting so long to move this a little bit faster before I become a victim of osteoporosis...heart failure..dialysis...and so on and do on. My next appointment I will express the need in a kind way of course...We need to move this along folks! Lol Please feel free to express and tell us your story. Writing...although I realize I'm all over the place. Haha It truly helps to know we are not alone during this time. I personally don't know anyone with this disease...so your all I've got! :) Especially when explaining to others if difficult unless they know or have had hyperthyroidism disorders..."Im always explaining NO not your thyroid although behind your thyroid completely different from the average "thyroid" sufferer. Which I also have learned to have simpathy for considering so many people seem to have it. Take Care everyone and I hope to hear your own story soon. Xoxo
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