Hello to everyone, Four years now I have lived with an AIDS diagnosis. It has indeed been very difficult. I must say that during that time I have sought support, communication from others in my situation. I have made some great friends and learned a great deal about living with HIV. Curiously, I have also found the opposite. Not on the rare occasion, but quite regularly. If you want to see it first hand try spending an hour or two in the HIV chatroom that Yahoo posts and listen to all the HIV bashers. As community, we need to really say enough is enough. When people that post on this site their HIV denialist point of views who do you think they are trying to support. You? No, they are only concerned with themselves. That someone should listen to the garbage they spew is their hope to sell a book, or a drug that helps no one. Sure they can say, just look at me, I dont take HAART and I am the healthiest person earth. Are they? No, no truly healthy person puts another at risk by touting things like, HIV tests are mostly unreliable, or HIV meds cause AIDS, or I eat sunflower seeds and I am cured of AIDS. Ridiculous. Yet almost every single website that purports to be there to support people living with the challenges of HIV and AIDS has these people come and advertise their dangerous wares. What other disease do you know of that has people so dedicated to spreading lies backed with outdated and longwinded articles by people that have been provn by the scientific community to be frauds? This is not support in any shape or form. Here are some undisputed facts. HIV is an incurable disease. It is diifuclt to live with. Socially it is still considered the most unacceptable disease on earth. Living with HIV and fighting the disease takes hard work and time. It takes reliance on medications (HAART) that do indeed help to saves millions of lives from what used to be a death sentence. Yes they are difficult to take, and yes HIV and the medicines have complications. The alternative is to go back in time to the ealry 1980's and die after being diagnosed. Thankfully these meds that the denialsist would have you think are the cause of peoples grief are in fact what has changed the face of AIDS. From death to life. That is something worth fighting for. Not some crazy persons story of how they refused them and live a perfectly healthy normal life. You might ask, Am I against alternative and holistic therapies for HIV? Not in the least. When people take vitamins and eat healthy and reduce stress, they can only benefit themselves. I beleive strongly in the power of prayer, meditation, exercise, and having loving family and friends to help get you through the hardest of times. What I dont do is say I prayed last night and I woke up feeling well so now I must belive that HIV is really just a conspiracy. To beat HIV and live a long productive life it takes a combination of all. To those of you newly diagnosed I would say this. All of us living with HIV or AIDS have walked a mile in your shoes. We had fears and doubts and all the aches and terrible pains that you have now. We should support you with our encouragement to talk to your DR. If your Dr is not helping then find another, and another if neccessary. It took me three different Dr's to get my health back to a managable situation. Offer friendship to others living with HIV without judgement. It is because of the social stigma that comes with HIV that we still have more than our fair share of difficulties aside from the physical. I cannot tell you how many times one of my best friends just came by to hang out with me and be my friend that truly lifted my spirits in my battle with the illness. If you need a friend like that , then look around this site and find wisdom in those that would stand by you. Not those that would try to take you down an unproven and dangerous path. Some old sayings come to mind, nothing in life is easy, if it is, it probably is not worth it. Say no to the denialist that have invaded your support group. They do not want what is best for you, but what is best for themselves. Real, compassionate, and caring friends ask how can I be there when you need me without asking anything in return. I welcome your comments, and I will be happy to be your friend when you need one, Sincerely, Scott
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