Well I live in northwestern PA on the boarder of northern NJ and sad to say I can not find anything in this area. I have looked for support groups no luck, I can't even find a doc who treats hiv. I have no clue as what I'm going to do.

That stinks. That's the problem with having this rurally. I guess I am lucky but I am near the state capital.

Have you tried the closest city and asked for the infectious disease dept, if they have one? 1 800 342 AIDS they are open 24/7 and can tell you your nearest Community Services agency.

Please let us know what happens. I am sure you're not the only one on board that's floundering around out there.

What about where they tested you? Or your local public health nursing agency they can usually refer people to the local agency. Good Luck and please keep posting, you need something to hold onto menatime.

Wow , sorry to hear that. Im near philadelphia pa and have medical insurance and have a infectious disease group of 5 doctors that im seeing every 3 months. i have seen all of them in the hospital when i was in there , but really ididn't i was in coma . But now i have seen 4 of them so far . They are 4 men and a women . ALL way cool . And really know what they are talking about . wish people that dont have good doctors had mine . IM so lucky .I hope all you guys that need good doctors get them also get the medical help you need . Ill keep all in my prayers . We all should do that. Have a great one.

Yes bluefin, you are lucky. And sometimes I feel aggravated that I have to travel so far for services but at least I get them. I am wondering if micjc64 has made any progress whatsoever. I am praying they did.

Yes this is a big problem,I just moved back from FL and there the doc are very nice and easy to find. I have looked on line spoke with other doctors and get the same reply there are none in this area I just don't get it. I guess I'll just have to go into NJ and see if there are any around.

Hey micjc64 are you anywhere near philadelphis closer to bucks county if that a help. I could give you the names of my guys to see. Hey maybe you could call them and they could maybe help you finding one closer , you know how it is sometimes a friend has a friend that has a friend . Ill help if ya want me to ok . Also i know im very lucky but not lucky enough to be hiv . jssut lucky where i live , and there being so many hospitales in philadelphia .Some quight big to like University of Penn . If it where me and I only had to go for blood work and see the doctor every 3 months like i do, I may be worth it to travel by train . I is a big city with lots of history to see .Worth a thought make it sort of like a tour of the city.Take care and if I can help let me know ok.Have a great day

Hey micjc64. Have you called the number I left on here? Once you get hooked up with an aids agency they can then point you in the right direction hopefully. Please let me know what happens, but find the nearest AIDS agency. Mine handles nine counties and that's why they send their workers out.

My local hospital has a GUM clinic that is ok but some of the nurses there I feel have an attitude, like just recently I went in as I do also have a mortal fear of Dr's and went in to ask them about possibilities for my sever migraines to which I was told " We don't handle stuff like that go to oyur GP which I dont have one for the reason just stated now and due to the fact that all my local surgeries are full up.
As for local charities I did go to T.H.T for help and counsellign but onone occasion when I went along I felt the guy was being a little bit to sexual and the 2nd time some young lady fomr there rung up and didnt seem bothered in t he slightest it was to matter fo fact for her.

The best service I have ever got was from the KOBLER clinic in London UK and my hat goes off to them for making me feel human and helping with all my problems, But in the end no matter how much good or bad care you may get form these health places it all depends on how you feel mentally and how you cope outside cos if you are down that is a large factor in making you feel and get even worse.

That's true drew, what matters is how you feel on the inside but good health care is tantamount to living a long life with hiv. I jet met someone today that was dx'd 23 years ago and says he may have had it longer than that! So we need good health care too. It's interesting to here about the type of care you get in the UK. Is it far to go to London to get the care you need medically, is it all paid for by the gov't? Alexandria

my 25 yrs exp with philadelphia aids resources will make your head spin with horror.

still, the range of health care options in any big city far outweigh those of rural areas, (like nw ohio) and for that reason, every single long term healthy surivor of hiv, has agreed,

move to the city while you can.

everyone says, its not that easy. easier said than done. we find in so many cases down the road however,that its easier done, than not done.

eventually, if faced with life and death, why would anyone want to be in a place they already know has inadequate resources. if we were talking about water, there would be no question, ya have to have access, period.

where ARE the hiv services?

big cities.

that reality alone determined many things for me.

today, viral load zero, tcel count in the 600's, i see my doctor relatively regularly for my usual dose of inhumane mistreatment, sloppy manners, and arrogance.i havent taken highly toxic immune supressing, aids causing, hiv meds for a long time.

what am i doing right?
-Taoe, philadelphia