Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation, culminating in drainage, often leaving open wounds that will not heal.

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Shower Time

Im sure this has been posted about before but there are so many posts to look through.....so.....

What do you use for cleaning the area's? What types of soaps or cleansers brands? Fragrance free or dye free?

Also is it best to soak in a bath or a shower?

Cold or hot water?

Thanks guys :)

Replies

deleted_user
deleted_user

I have an Epsom Salt (4-5 tbsps) bath once or twice a week, warm water, not too hot. I put a couple of drops of organic Lavender oil in my bath as well
I shower twice a day using Protex, which is an antibacterial soap. But I have just been given a handmade nautral soap from a friend, which has Tea Tree and Neem oil in it, so might start using that as well.
I dab undiluted Tea Tree Oil on any spots and wait for my skin to air dry before I get dressed.

Hope that helps.
genocon
genocon

I use Dr. Bronner's tea tree soap in the shower, and sometimes I'll clean certain areas with a little rubbing alcohol, mostly to get rid of adhesive residue from bandages.
deleted_user
deleted_user

I shower with goat milk soap it really cleans my HS areas well and leaves me feeling/smelling clean all day. Goat milk soap has a smell to it that I can't explain, not bad but you either like it or don't.
Also before bed I put some Epsom salts and coconut oil in the whirlpool and just let the salts do their magic =)

xoEsmee
ShannonA
ShannonA

I use Hibicleans at least every other day. (surgical scrub surgeons use to keep their hands/arms clean before they go into surgery)

And I wash in between with Dove gentle soap and tea tree oil soap. It might not be keeping the baddies at bay, but it does help to keep the smell down.

When showering I used hot enough water to clean myself, and then when done let the water run on my a few mins on either cool or cold, depending.

I haven't found that bathing does better than showering. A hot bath usually feels better, unless you have an open wound and city water like me. The combo is no fun, open wound and hot city chorinated water. OUCH. But soaking in a hot tub sometimes will help the aliens to come up and come on out, so that you can get some relief.
deleted_user
deleted_user

Thanks for the responses :) Im definetly going to try these products.

@Raheel I have tried Epsom but never with lavender and i have also never used tea tree. Thanks

@Genocon where can i find Dr. Bronners tea tree soap? I would like to see what its all about.

@K9 are you taking about goat milk out of a "milk" container or....

@ShannonA I never thought to use Hibicleans. Would it be bad to use daily?
ShannonA
ShannonA

Youarenotyourskin,

I would guess it would depend on your skin. I have naturally very oil skin, and at one point was using it twice a day, but then cut it back to once a day to save on the water bill :0 and because washing twice a day with it was getting a little hard on the wallet XD And I never had any issues with my skin drying out or anything like that.
BUT, I have had friends who used it 2x's a day or at least once a day and had issues with dry or irritated skin.
So I would say to start out with every other day and see how you do. You don't want to go giving yourself more skin discomfort trying to help yourself.
I think what k9 is talking about is a bar of soap made from goat's milk. I've never used anything like that so I don't have an opinion on that. :)
deleted_user
deleted_user

YANYS, I think k9 was talking about goats milk soap, which I LOVE. It smells so good! (but that's just me) You can buy it from health food shops, or if they don't have it they will know which direction to point you in. You can also find Dr Bronners from a health food shop or online.

I find the Lavender isn't so much for my skin, more for my sanity. It helps relax and calm me when I am feeling upset.
rykscoogan
rykscoogan

Hi! Our doctor recommended a (very) diluted bleach bath once a week. About 1/2 cup in a whole bathtub. I have to be honest and say since the daughter has been doing so well on the Humira, we've not really tried it yet, but he's a pretty good doc, with nothing but excellent suggestions so far, so I'd certainly give it a go.
genocon
genocon

Like Raheel said, it's in most health food stores, but I get it from a regular supermarket that has an organic section (Fred Meyer where I'm at).
deleted_user
deleted_user

I am new to this site so this is my first post. Or reply lol. Anyway I have been living with HS now for a little over 10 years. I am almost as severe as it gets. Pain daily and in the last 5 years I have never had a time where I didn't have an open draining wound. I have tried many things but this is what I have found to work the best and I share it with as many people as I can. I use Dawn antibacterial dish washing liquid as a body wash. I love the green apple it smells great! (I also use it as a hand soap at my kitchen and bathroom sink. I make my own foaming soap out of it so it lasts longer) It doesn't even sting when used in open wounds. It helps to stabilize the moisture (sweat) in all areas on my body as well as the wash away any bacteria that may be left on the skin in and around the wounds. It doesn't even leave a residue and it causes no pain!! :) Dawn is an awesome grease fighter in the kitchen sink so you may find you need a moisturizer of some kind. Depending on how often a day you bathe ( I have at least 2 to 5 baths a day just to soak in the nice hot water (because I find compresses don't work well for me) so that it may help bring bring any infection i may have to my skins surface. Occasionally, once a week or so I will settle in with some Epsom salts but my absolute favorite is Avon's Skin so soft bath oil. (the pink bottle smells way better than the original scent in the blue/green bottle) I add a cap or two full to the last bath of the day (before bed time) and it helps restore any possible dry skin as well as relax me so I can get to sleep easier. Also the skin so soft when added to bath water does not cause any pain either. I hope this helps a bit
deleted_user
deleted_user

Never thought to use bleach or Dawn. Will have to try and see how my HS reacts :)
deleted_user
deleted_user

Genocom

I was reading that you use rubbing alcohol. WOW that must burn/sting like crazy!!! I often cover my sores with bandages (at least the ones that I can get a bandaid to stick to) and I remove the residue using avons skin so soft bath oil. The residue desolves almost immediately and there is no sting or pain of any kind when it gets into the wound.

Just a thought I would share!

good luck
deleted_user
deleted_user

Raheel Kerr was right you can get some goat milk soap from almost any health food store and I even find it at Wal-Mart!

xoEsmee
genocon
genocon

It only burns or stings depending on how bad the wound is. Sometimes it doesn't hurt at all... and other times, a lot. I don't do it all the time anymore.
deleted_user
deleted_user

I am also new and this is also my first post. In the past I used antibacterial soaps but I stopped using them because they were so drying on my skin and made my HS actually worse (I am also sure they were killing the so called "good bacteria" as well and irritating my sensitive skin).

I then switched to Dove bar because I remembered that a dermatologist once told me that what I needed was a moisturizing soap, not a harsh one to wash my skin and wounds. I liked Dove soap and helped me feeling clean. But now I am avoiding "big names and commercial" body products and I am using an oatmeal soap which is non irritating and very moisturizing.

As for the topic antibacterial, after I shower I am using Band-Aid wound wash. I do have Hibiclens and Bactine but if you read the ingredients they have "fragrance" and Hibiclens has "red dye" + "other ingredients" so I prefer the Band-Aid, colorless and without fragrance.

I sometimes use lavender essential oil on the affected areas because it is antimicrobial and antibacterial...plus naturally fragranced! I sporadically use tea tree but it didn't do miracles for me and I do not like the scent.