I was getting my 2nd remicade infusion yesterday and I had an "allergic reaction." I was about 10 minutes from finishing the infusion when I felt very "not right." My chest felt heavy with a strange rush like a non-stop adrenaline rush, my neck and jaw got very tight, and I felt like I was going to faint. It turned out that my pulse rate was 145 and my blood pressure went up to 192/110. My O2 levels were normal. They gave me benadryl and cortizone in my IV and took me to the ER, which thank goodness was down the hall from the infusion room. It was a very scary experience. I have to call the doctors in the morning to see if I can/should continue with the treatments. I've been told they can give me steroids and more meds in my IV to stop a reaction, but what if it happens again? I got through it like a crazy, strong woman yesterday, but I woke up at 1:30 having myself a good cry over the whole thing because Remicade is really my last shot before having radical excision. My hope is really falling right now. Is all this worth the risk? Sometimes I think yes, because there is no other hope for HS, and then after yesterday, I think no, because I don't want to die at 35 because of a biologic medication. I'm so confused and nervous. I'd just liked to thank God for being with me yesterday and my best friend for being strong when I was looking at her like "oh crap, woman, mayday, mayday!"
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