I think most here are willing to try anything that might help. I know if just one person finds something that works and tells me about it, Then I see it as another option I can to try. Granted I run everything by my doctor before I try. And I have not tried the GF diet and not sure if I will, but the option is there cause someone brought it up to me.

As for surgery being a cure....I have had surgery more than once and it did not help.

I couldn't agree more and I have been on a GF diet for 5 years. (Forcefully) Due to food allergies. I also can't eat Dairy or Eggs. So my diet pretty much sucks. Surgery has not helped me at all. I guess I am just doomed to this disease.

Sefidel, have you ever asked yourself what caused the first cysts? Because if we can prevent the cysts in the first place, then we don't have to worry about the glands rupturing?
The cysts are a part of an autoimmune response to foreign proteins. Wheat gluten is a protein that a lot of people with autoimmune diseases react to; to include Chrons and RA.
I went to a surgeon, and he would not consider operating on me again.
My dermatologist has recommended that I stay on the gluten free diet as she has see a remarkable improvement.
For those who do not have insurance and cannot afford to see a doctor, then trying a GF diet is the most economical route to try.
Why does it bother you so, that a GF diet works for some of us?

As for gf people still posting problems, im about the truth first and foremost. I never said it was a cure, I report how much it has helped improve my hs. This is a support group and when I hear others say how there doing on gf, or anything else it helps me too. No one is selling anything here especially snake oil. My doctor is on board with my gf. My glands may be ruptured but they dont flare up for weeks on end just hours or days. Why do you want people to suffer more by being unsupportive to any treatment or diet? You start a post like this and its like your calling all of us gf people liars. There is no place for behavier like that in a support group. Your only causing undo strife.

Dear Sefidel, Surgery is a fix. It is not a PERMANENT CURE! Most people that seek the surgeons are at the ends of their ropes with nothing but hope in a surgeons knife! Most of the time those who have surgery have the cysts come back? Why? THIS IS AN AUTOIMMUNE DISEASE WITH NO CURE ! I repeat no cure! My daughter suffers greatly with this crap. She is 17, has Down Syndrome and multiple issues with her health. I felt diet was the key in trying to get the disease to be as DORMANT as possible. I do not believe that her diet can CURE HER.....It does help her though with her problems. She used to get the cysts under her arms, under her breasts, and she does have issues in the groin area and on the buttocks area....She gets FAR LESS ISSUES with her HS by being on the paleo diet which is also gluten free. Her doctor wants her on nonstop antibiotics ( dermatologist) which she will become resistant to and when you need them to work THEY WONT WORK! I truly feel that we are all here to SHARE our experiences NOT knock eachother for suggesting different diets, protocals, treatments. Most do seek out medical care for this disease....but I find it offensive that you are suggesting we are selling snake oil! I AM NOT SELLING ANYTHING, only posting what has helped my daughter...... No, she will never be cured. only
God can do that..... and hippie food advice? Please, that is really
going over the edge. I am offended that you are being so judgemental about all of this...tangerinebear

Sefidel, Why all the hateing on GF if it actually helps some of these folks. I dont believe i've heard anyone say that diet is a cure. Rather diet for some is like preventitive treatment to keep they're HS in remission. I am very pleased to hear that surgery has worked for you. For me and many others it is not the answer. If surgery worked for me I would let them cut my entire Ace off. I mean its not like its a liver ..right? But I have had 3 surgeries and no success so there will be no more.

Please be more compassionate with your fellow sufferers. At this point there is no known cure. If we all continue to try various treatments , report our results, show support in our failures, then maybe , just maybe, we will someday find the answer. Please be a part of this Sefidel, we need your help and you need ours.

May God Bless you son!

The truth is....eating healthily is good for you regardless of what illness you may have.

Because I do this diet does not mean that I am opposed to surgery.

Surgery is no cure.

Preventing new sores is better than waiting until you have to get them cut off by a surgeon.

The truth is though, I sense someone who is really suffering with this HS and has place a whole lot of faith in the medical community and surgeons/surgery. Time will reveal that surgery is only a temporary solution with this illness.

I think the stubborn attitude is a result of someone who has not become willing and desperate enough to try something new.

The western medical world cannot cure HS.

And the truth is....our illness is rare. Because it is rare there is very little funding for HS research.

However maybe your doctor has a magical scalpel and the sores are removed and just stay gone. I seriously doubt it but then again you never know.

Hope you find some peace brother

Dus

I think that GF diets is something that should be mentioned to new group members. For some it helps, so why NOT add it to the list of possible helps?
I USED to have a problem with the way the GF diet thing used to be presented here, kinda pushy and as if it was a cure all for HS. However that has changed (the way it was presented,that is).
I was on a GF diet for some time, it didn't changed my HS, but I certainly don't want others to think that if it didn't work for/help me that it won't help them.
This forum is all about trial and error, sefidel, what works for one might NOT work for another. We just have to keep trying to find what works for each of us and share what we have learned.
I don't mind GF being presented as a possible help, so long as it is done in a manner that does NOT suggest that it is a cure all or a "definitely will work" deal.
Please let's not interrupt the good thing we have going here with all the information sharing and caring our members show.
much love Sefidel, I CAN however understand your frustration.

I will add that most professional doctors do say that DIET works for some and NOT for others. It may or may not help. Also though it is said that the only people who should be jumping on the gluten free band wagon the is those who have Celiac disease or have gluten sensitivities. Celiac is an autoimmune disease and can cause destruction of your intestinal system. If you have one auto-immune disease you are pre-disposed for another. However having another auto-immune disease other than Celiac does not warrant a gluten free diet. For example if you have RA a gluten free diet most likely will NOT help you.

I understand this heated debate as I am in another support group for AS in which the dieters claim they are right and the others do not wish to hear it. It seems the real issue is that the dieters not all but some want to insist that their way is the only way. That upsets people. Because it is after all trial and error. It works for some and NOT for others.

The solution offered on the AS forum was to open a forum just for people who WISH to explore the idea of diet as a treatment plan. While those who DO NOT wish to even think about diet are not being told they are dumb for not trying it.

There is NO CURE!!!! No one thing will work for everyone. We are all different and I would not want it any other way. I think we all simply need to remember this is a support group. You may not always agree with everyone here. But again WE are ALL DIFFERENT INDIVIDUALS. We have free will. If you do not like those topics, do not participate in them. I for one am someone that does not like the diet approach as I have tried many of them and they DO NOT work for me. They MAY WORK for someone else though. It is possible.

We should remember to be kind to one another and that we are all here for a reason.

God Bless!

PEACE PEOPLE. GF diet might be a solution for some here. Just don't beat the group over the head with it. Again and again and again. Put up a new post as to what it has done for you, here and in the treatment area and then relax. You will have done your GF duty for all concerned. If new people have sucess with the diet they can post there. Good or bad idea, I don't know. It just gets old after a while.

Cure soon? I doubt it. GF do not be discouraged....your GF mission has profoundly helped me and my HS. Also has helped my roommate and now my mother and brother who have also gotten on board.

GF please continue to say what you need to say...if people don't like it its not really your problem. You have every right to be passionate about what your passionate about and post what you want to post.

No one else's advice on this entire forum has helped me as much as yours ok. Please do not feel defeated here.

Honestly...I don't like everyone's attitude's on here ALL the time and frequently disagree with some of the logic and methods that have worked for some. The point is I don't create posts that attack any of you basically telling you to 'shut up'

I don't care how old GF gets. It works for some of us and we have a right to continue to talk about it. If it bothers some of you then don't read the posts if its going to irritate you.

I love and care about everyone on here....I understand the struggle of HS I am a fellow sufferer.

Just saying if something irritates you just leave it alone and do something else.

I have been on both sides of the fence here....had an equal disdain for GF and her 'rants' at one point. Well look what happened? Crazy huh?

If my comments have hurt anyone I am sorry. I will no longer comment on gluten free anything.

I have been suffering with HS for as long as I can remember. I have only had it half diagnosed from my GP who I get the impression would rather I left him alone and that was almost a month ago. I cannot bear to sit in his room begging for painkillers when I am refused. The earliest I can be seen by a dermatologist is the 21st April. In the meantime I am 'leaking all over the place' and in heaps of pain, but there's nothing much I can do about it other that pop some ibruprofen and look forward to a couple of hours sleep. I have started the GF diet about a month ago, and although it has not in anyway relieved my symptoms, it has helped to shift some weight, which will eventually help me. If nothing else to prove to the doctors that it's not a weight related disease!

I'm 100% symptom free and I eat grains, but not gluten.

Hidradenitis is caused by toxicity clogging up your sweat glands (the one of three major ways our body rids itself of foreign, toxic chemicals commonly found in the modern food supply--sweatin', pissin', crappin').

Improperly cooked and improperly chewed grains irritate the digestive tract which allows the true culprit, toxic chemicals (which are concentrated in conventional animal products; yes animals have more pesticides than veggies do) to leech out in to the rest of the body.

Nuts ought to be soaked if not sprouted and should always be raw. Grains should be presoaked for sure and cooked thoroughly and chewed well.

Soy is perfectly fine. Phytoestrogens have weak estrogen activity and actually prevent other estrogens from binding to your estrogen receptors (our society is abundant in these--pesticides, bpa, and synthetic estrogen injected in to dairy cows). Anything stated otherwise is dairy-industry propaganda and fad diet nonsense.

I am 100% symptom free. Don't eat chicken, pork, beef, or farmed fish unless you know an ethical free range farmer and have the cash to shell out for it. Otherwise, if you don't eat grain, beans, or nuts, you'll be protein deficient.

Try a juice fast to give your digestive system a break and a chance to heal from years of abuse and you'll be able to tolerate grains again.

Once again, I've been maintaining a 100% symptom free state for a few months (other than healing old lesions, and the recurrence of a pesky one in my left armpit due to some chicken I accidentally ate in some vietnamese spring rolls which I specifically ordered to be without). Otherwise, I don't have hidradenitis anymore.

Hidradenitis is a symptom, not a disease.

You ever notice that soaked, raw nut butter is more tolerable than even regular soaked nuts? I have. Probly because I've tried it. It's because it's smoothed out and doesn't scratch up your insides, and is broken down easier.