
Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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having HS has been cuasing me more mental pain lately than physical.I have always had high tolerance for pain don't get me wrong Hs has left me in the bed many of days crying from the pain but now more than ever it has taking ahold of mt mentally. I guess the hardest part is having people around me that don't understand even if i try to explain it. I have good days a nd baad days on th good days i try to make the best of them. So then when i am having a bad day people think i am faking just to get attention. this leaves me not wanting to share how i am feeling with anyone. The one person that caares enought but still does full understand but loves me unconditionally is out of the country (work) so i feel like i don't have anyone to turn to. I am up most night i only get about 3 to 4 hrs of sleep a day. Always crying at the drop of a hat. I am so excited but yet still stress becaus i get to go see the one who loves me next month but i am having a real bad outbreak right now and i don't want this to keep me from going because i really need this trip right now. So what are somethings other than meds that you have maybe tried to help tou get trought the bad days?Cause i have tried meds for depression many years ago as i have been suffering with HS over 10 yrs and i didn't like the way they made me feel.
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Each person is different and the disease, and how it effects us is different too. Some people find solace in everyday activities and healthy relationships; others can't even get out of bed in the morning.
I've suffered with depression on and off for the past 20 years. Bad flareups of the HS seem to bring on my depression and I experience anxiety when my family and friends go about planning things in advance. I can't stand a trip, or fancy dinner cause I just don't know how my body will react and if I will get a flareup.
On a recent trip to my doctor we started working on a program for dealing with minor depression. It's an alternative to medication and it's free (here in Canada at least). It's called Bounceback. You can check out the website at www.bouncebackbc.ca. Maybe ask your doctor about it. It might be worth trying.
Good luck!
1. I turn my stereo on to my favorite music (be sure to have UPBEAT songs..you sure dont need any crying in my beer tunes right now!LOL) and sing along..even if I dont feel like singing at first, I usually feel better after I have done a few songs..and believe me my voice sucks! but it still helps.
2. I burn (or use my candle warmer) some wonderful candles, their smell seems to help me somehow, not quite sure how but it does relax me.
3. I also like to get into a hot bubble bath with a book, the warm water heps ease the pain and the book takes me to places I will never get the chance to see and can transform me into someone I will never be able to be.
4. I also enjoy my computer and will chat with friends or play games to occupy my mind.
5. I also try to remeber to dress in bright colors and have my curtains open to allow sunshine in to help life my black hole depression. Even stepping outside for a few minutes a day helps.
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