Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

1,622 Members
4,821 Posts
0 Online
Skin & Hair
/ Hidradenitis Suppurativa Support Group

New to the group

deleted_user
deleted_user
Hello everyone,

I just joined today after finding this site yesterday evening. It's good to finally have people I can talk to that is going through the same thing I am. I have had HS for twenty-years now, diagnosed at thirteen. I have a open wound now under my right arm and in some pain. I'm looking for a doctor right now. I look forward to getting you guys. Be encouraged :)
deleted_user
deleted_user
Good luck finding a doctor.
deleted_user
deleted_user
Hello there, my name is Caitlin. I just joined too and I wanted to let you know that you are not alone. I have had an outbreak of 5 spots at once lately and I feel your pain literally.
deleted_user
deleted_user
Hi Im new as well. i have literally tried everything and still suffer greatly. i am almost at my wits end with this. I actually go to the "best derm" in my state and let him know what meds I need. terrible. i cant believe there are so many sufferers. this saddens me, however, i never had anyone to talk to that even remotely could understand what i go through every day.
deleted_user
deleted_user
Thank you :) I finally found one, he referred me to a plastic surgeon. My surgery is scheduled for April.
Posts You May Be Interested In
  • carrie415

    Widow/Widowers Traveling/Cruise Trips??

    Posted by: carrie415
    Last Reply: Myfavorite
    11
    I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
  • joannklingaman

    Grief

    Posted by: joannklingaman
    Last Reply: lovesloons
    11
    A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...