Hello All - i am new to this group. I was just diagnosed with hemochromatosis - homozygote - i am a 32 year old female - ferritin was 469, TIBC 88.8% and have double C282Y mutation...I am freaking out about phlebotomy - i went for my consulatation with the hemotologist and she took half a unit and i freaked - i have to go ever other week for 2 months and then we re-test - she thinks that will do it and then i will have to go a few times a year...any tips for getting over the psychological fear of needles?? - i nearly faint when they take a vile from me nevermind a pint!....also, my doctor is very laid back about the whole thing - like this is a nothing disease and i should be happy its all i have and they got it early and i should just deal with it...she doesn't think i should worry about any complications as it is not until ferretin exceeds 1000 that problems start...what about things like fatigue? i have felt rather sluggish the last few years but obviously that could be many things besides this ...do you think phelbotomy will make that better? worse? any advice or thoughts are greatly appreciated!!
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